Family quality-of-life burden in chronic spontaneous urticaria: A multicentre study.
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Abdalla Beatrice Martinez Zugaib, Criado Roberta Fachini Jardim, Kulthanan Kanokvalai, Kocatürk Emek, Cherrez-Ojeda Ivan, Giménez-Arnau Ana Maria, Maurer Marcus, Ensina Luis Felipe, Bernstein Jonathan A, Hide Michihiro, Dortas Junior Sergio Duarte, Valle Solange Oliveira Rodrigues, Dias Gabriela, Xepapadak Paraskevi, Dangi Priyanshi, Podder Indrashis, Trajkova Vesna, Teovska Mitrevska Natasa, Hamed Nasr Iman, Al Hinai Bushra, Bartosińska Joanna, Krasowska Dorota, Szczepanik-Kułak Paulina, Gungor Hilal, Ozceker Deniz, Çiçek Kübra, Özkaya Esen, Erdem Yasemin, Ergün Mücahit, Tosun Mustafa, Kara Rabia Oztas, Li Jie, Allenova Anastasia, Criado Paulo Ricardo
Аннотация
METHODS: A cross-sectional, multicentre and international study conducted between January and December 2024 in Urticaria Centres of Reference and Excellence (UCARE) centres located in several countries including Brazil, China, Ecuador, Greece, India, Oman, Poland, Russia, Thailand, Turkey, Peru and North Macedonia. Statistical analyses, including non-parametric tests and multiple regression models, were employed to explore associations between disease severity/control and family burden.
RESULTS: Poorly controlled CSU significantly deteriorated family members' quality of life, particularly in emotional, physical and social domains. Higher disease severity and lower disease control scores were associated with increased stress, greater caregiving burden and elevated health expenditures. In opposition to family relations, older age and longer time since diagnosis mitigate negative impacts, while insufficient treatment regimens exacerbated them.
CONCLUSIONS: Inadequate control of CSU amplifies the burden on families, underscoring the need for effective and supportive care strategies.