Statement from the frontal fibrosing alopecia international expert alliance: SOFFIA 2024.
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Meah Nekma, Li Jane, Wall Dmitri, York Katherine, Bhoyrul Bevin, Bokhari Laita, Coulthard Lachlan, Asfour Leila, Abraham Leonardo Spagnol, Asz-Sigall Daniel, Bergfeld Wilma F, Betz Regina C, Blume-Peytavi Ulrike, Callender Valerie, Chitreddy Vijaya, Combalia Andrea, Cotsarelis George, Craiglow Brittany, Dhurat Rachita, Dlova Ncoza, Donovan Jeff, Doroshkevich Andrei, Eisman Samantha, Farrant Paul, Gadzhigoroeva Aida, Green Jack, Grimalt Ramon, Harries Matthew, Hordinsky Maria, Irvine Alan D, Jolliffe Victoria, Kaiumov Spartak, King Brett, Kossard Steven, Lee Joyce, Lee Won-Soo, Lortkipanidze Nino, McMichael Amy, Atanaskova Mesinkovska Natasha, Messenger Andrew, Mirmirani Paradi, Olsen Elise, Orlow Seth J, Ovcharenko Yuliya, Piraccini Bianca Maria, Pirmez Rodrigo, Rakowska Adriana, Reygagne Pascal, Roberts Janet, Rudnicka Lidia, Saceda-Corralo David, Shapiro Jerry, Sharma Pooja, Silyuk Tatiana, Suchonwanit Poonkiat, Takwale Anita, Tosti Antonella, Visser W I, Vañó-Galván Sergio, Vogt Annika, Wade Martin, Yip Leona, Zlotogorski Abraham, Zhou Cheng, Sinclair Rodney
Аннотация
OBJECTIVES: To produce an international consensus statement on the treatment modalities and prognostic indicators of FFA.
METHODS: Sixty-nine hair experts from six continents were invited to participate in a three-round Delphi process. The final stage was held as a virtual meeting facilitated via Zoom. The consensus threshold was set at ≥66%.
RESULTS: Of 365 questions, expert consensus was achieved in 204 (56%) questions following completion of the three rounds. Three additional questions were included at the final meeting. The category with the strongest consensus agreement was disease monitoring (9; 100%). Questions pertaining to physical therapies achieved the least category consensus (15; 40%), followed by systemic therapy (45; 43%).
LIMITATIONS: The study lacked sufficient representation from Africa and South America.
CONCLUSIONS: SOFFIA highlights areas of agreement and disagreement among experts. Robust research is warranted to provide evidence-based treatment recommendations.