The Journal of urology · 2017
Psychological Adjustment of Parents of Children Born with Atypical Genitalia 1 Year after Genitoplasty.
СтатьяМногоцентровое исследованиеНазвание и аннотация: Перевод в очереди
Обработка статьи · этапы, ошибки и управление
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Ellens Rebecca E H, Bakula Dana M, Mullins Alexandria J, Scott Reyes Kristy J, Austin Paul, Baskin Laurence, Bernabé Kerlly, Cheng Earl Y, Fried Allyson, Frimberger Dominic, Galan Denise, Gonzalez Lynette, Greenfield Saul, Kolon Thomas, Kropp Bradley, Lakshmanan Yegappan, Meyer Sabrina, Meyer Theresa, Mullins Larry L, Nokoff Natalie J, Palmer Blake, Poppas Dix, Paradis Alethea, Yerkes Elizabeth, Wisniewski Amy B, Wolfe-Christensen Cortney
Аннотация
PURPOSE: We examined the psychological adjustment of parents of children born with moderate to severe genital atypia 12 months after their child underwent genitoplasty.
MATERIALS AND METHODS: Parents were recruited longitudinally from a multicenter collaboration of 10 pediatric hospitals with specialty care for children with disorders/differences of sex development and/or congenital adrenal hyperplasia. Parents completed measures of depressive and anxious symptoms, illness uncertainty, quality of life, posttraumatic stress and decisional regret.
RESULTS: Compared to levels of distress at baseline (before genitoplasty) and 6 months after genitoplasty, data from 25 mothers and 20 fathers indicated significant improvements in all psychological distress variables. However, a subset of parents continued endorsing clinically relevant distress. Some level of decisional regret was endorsed by 28% of parents, although the specific decision that caused regret was not specified.
CONCLUSIONS: Overall the majority of parents were coping well 1 year after their child underwent genitoplasty. Level of decisional regret was related to having a bachelor's level of education, increased levels of illness uncertainty preoperatively and persistent illness uncertainty at 12 months after genitoplasty but was unrelated to postoperative complications.
MATERIALS AND METHODS: Parents were recruited longitudinally from a multicenter collaboration of 10 pediatric hospitals with specialty care for children with disorders/differences of sex development and/or congenital adrenal hyperplasia. Parents completed measures of depressive and anxious symptoms, illness uncertainty, quality of life, posttraumatic stress and decisional regret.
RESULTS: Compared to levels of distress at baseline (before genitoplasty) and 6 months after genitoplasty, data from 25 mothers and 20 fathers indicated significant improvements in all psychological distress variables. However, a subset of parents continued endorsing clinically relevant distress. Some level of decisional regret was endorsed by 28% of parents, although the specific decision that caused regret was not specified.
CONCLUSIONS: Overall the majority of parents were coping well 1 year after their child underwent genitoplasty. Level of decisional regret was related to having a bachelor's level of education, increased levels of illness uncertainty preoperatively and persistent illness uncertainty at 12 months after genitoplasty but was unrelated to postoperative complications.
Предметные рубрики MeSH
AdultChild, PreschoolDecision MakingDisorders of Sex DevelopmentEmotional AdjustmentFemaleGenitaliaGynecologic Surgical ProceduresHumansInfantLongitudinal StudiesMaleMiddle AgedParentsPostoperative ComplicationsPostoperative PeriodQuality of LifePlastic Surgery ProceduresStress, PsychologicalTreatment OutcomeUrologic Surgical Procedures, Male