Journal of perinatology : official journal of the California Perinatal Association · 2026
Parental experiences of discharge preparation and preparedness after infants' hospitalization for surgically correctable congenital anomalies.
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Akinkuotu Adesola C, Obayemi Joy E, Johnson Madelyn, Sharpe Jordan, Knoepp Patricia, Phillips Michael R, Elton Scott, Goodnight William, McLean Sean E, DeWalt Darren A
Аннотация
OBJECTIVE: To explore parental experiences of pre-discharge education, discharge preparedness, and post-discharge support after infants' hospitalization for surgically correctable congenital anomalies (SCCAs).
STUDY DESIGN: Qualitative study using semi-structured interviews with English-speaking women whose pregnancies were associated with SCCAs from 2018-2023 and resulted in live birth and survival to discharge from a tertiary care children's hospital. Interviews were analyzed thematically.
RESULTS: Twenty-two interviews were conducted. SCCAs included congenital diaphragmatic hernia (n = 8), congenital pulmonary airway malformations (n = 4), myelomeningocele (n = 5), gastroschisis (n = 4), or omphalocele (n = 1). Emergent themes were: (1) lack of consistency in pre-discharge education and preparation, (2) balancing anxiety and confidence, (3) parental need for multi-layered post-discharge support, and (4) parent-identified opportunities to strengthen discharge preparation and post-discharge support.
CONCLUSION: Parents of infants with SCCAs receive variable pre-discharge education that may limit self-efficacy and heighten anxiety during the transition home. Interventions including standardized, structured discharge education and post-discharge support may improve parental preparedness and post-discharge confidence.
STUDY DESIGN: Qualitative study using semi-structured interviews with English-speaking women whose pregnancies were associated with SCCAs from 2018-2023 and resulted in live birth and survival to discharge from a tertiary care children's hospital. Interviews were analyzed thematically.
RESULTS: Twenty-two interviews were conducted. SCCAs included congenital diaphragmatic hernia (n = 8), congenital pulmonary airway malformations (n = 4), myelomeningocele (n = 5), gastroschisis (n = 4), or omphalocele (n = 1). Emergent themes were: (1) lack of consistency in pre-discharge education and preparation, (2) balancing anxiety and confidence, (3) parental need for multi-layered post-discharge support, and (4) parent-identified opportunities to strengthen discharge preparation and post-discharge support.
CONCLUSION: Parents of infants with SCCAs receive variable pre-discharge education that may limit self-efficacy and heighten anxiety during the transition home. Interventions including standardized, structured discharge education and post-discharge support may improve parental preparedness and post-discharge confidence.