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Войти в исследования Recording of non-musculoskeletal manifestations, comorbidities and safety outcomes in European spondyloarthritis registries: a survey.
Обработка статьи · этапы, ошибки и управление
Ошибки и ограничения
История · было → стало
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Ahmadzay Zohra F, Heberg Jette, Jørgensen Jacob B, Ørnbjerg Lykke M, Østergaard Mikkel, Møller-Bisgaard Signe, Michelsen Brigitte, Loft Anne Gitte, Jones Gareth T, Hellamand Pasoon, Scherer Almut, Nissen Michael J, Pavelka Karel, Závada Jakub, Laas Karin, Vorobjov Sigrid, Nordström Dan, Sokka-Isler Tuulikki, Regierer Anne C, Reich Andreas, Gudbjornsson Bjorn, Thorarinsdottir Katrin, Iannone Florenzo, Favalli Ennio Giulio, van de Sande Marleen, Provan Sella Aarrestad, Kvien Tore K, Rodrigues Ana Maria, Gonçalves Cátia F, Codreanu Catalin, Mogosan Corina, Rotar Ziga, Prikmajer Katja Perdan, Castrejon Isabel, Otero-Varela Lucía, Di Giuseppe Daniela, Wallman Johan K, Ciurea Adrian, Möller Burkhard, Kenar-Artın Gökçe, Yıldırım Tuba Demirci, Macfarlane Gary J, Rotariu Ovidiu, Glintborg Bente, Hetland Merete Lund
Аннотация
METHODS: Through a survey with 4,420 questionnaire items, we explored the recording practices of 58 pre-defined conditions (i.e. NMMs, comorbidities and safety outcomes) covering 10 disease areas. In all registries we mapped for each condition whether it was recorded, the recording procedure and the potential to identify it through linkage to other national registries.
RESULTS: Conditions were generally recorded at entry into the registry and clinical follow-up visits using a pre-specified list or a coding system. Most registries recorded conditions within the following disease areas: NMMs (number of registries, n = 15-16), cardiovascular diseases (n = 10-14), gastrointestinal diseases (n = 12-13), infections (n = 10-13) and death (n = 14). Nordic countries had the potential for data linkage and generally had limited recording of conditions in their registry, while other countries had comprehensive recording practices.
CONCLUSION: A wide range of conditions were consistently recorded across the registries. The recording practices of many conditions and disease areas were comparable across the registries. Our findings support the potential for future collaborative research.