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Global spine journal · 2022

We Choose to Call it 'Degenerative Cervical Myelopathy': Findings of AO Spine RECODE-DCM, an International and Multi-Stakeholder Partnership to Agree a Standard Unifying Term and Definition for a Disease.

СтатьяНазвание и аннотация: Перевод в очереди
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Davies Benjamin M, Khan Danyal Z, Barzangi Kara, Ali Ahmad, Mowforth Oliver D, Nouri Aria, Harrop James S, Aarabi Bizhan, Rahimi-Movaghar Vafa, Kurpad Shekar N, Guest James D, Tetreault Lindsay, Kwon Brian K, Boerger Timothy F, Rodrigues-Pinto Ricardo, Furlan Julio C, Chen Robert, Zipser Carl Moritz, Curt Armin, Milligan James, Kalsi-Rayn Sukhivinder, Sarewitz Ellen, Sadler Iwan, Widdop Shirley, Fehlings Michael G, Kotter Mark R N

Аннотация

STUDY DESIGN: Modified DELPHI Consensus Process.

OBJECTIVE: To agree a single unifying term and definition. Globally, cervical myelopathy caused by degenerative changes to the spine is known by over 11 different names. This inconsistency contributes to many clinical and research challenges, including a lack of awareness.

METHOD: AO Spine RECODE-DCM (Research objectives and Common Data Elements Degenerative Cervical Myelopathy). To determine the index term, a longlist of candidate terms and their rationale, was created using a literature review and interviews. This was shared with the community, to select their preferred terms (248 members (58%) including 149 (60%) surgeons, 45 (18%) other healthcare professionals and 54 (22%) People with DCM or their supporters) and finalized using a consensus meeting. To determine a definition, a medical definition framework was created using inductive thematic analysis of selected International Classification of Disease definitions. Separately, stakeholders submitted their suggested definition which also underwent inductive thematic analysis (317 members (76%), 190 (59%) surgeons, 62 (20%) other healthcare professionals and 72 (23%) persons living with DCM or their supporters). Using this definition framework, a working definition was created based on submitted content, and finalized using consensus meetings.

RESULTS: Degenerative Cervical Myelopathy was selected as the unifying term, defined in short, as a progressive spinal cord injury caused by narrowing of the cervical spinal canal.

CONCLUSION: A consistent term and definition can support education and research initiatives. This was selected using a structured and iterative methodology, which may serve as an exemplar for others in the future.