International development and validation of a multilingual bank of items for the self-assessment of essential knowledge by systemic lupus erythematosus patients: the SLE Knowledge Assessment score (SLAKE).
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Ошибки и ограничения
История · было → стало
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Satrin Antonin, Piga Matteo, Gatto Mariele, Fuentes-Silva Yurilis, Gomez Puerta José A, Padjen Ivan, Pons-Estel Guillermo, Ugarte-Gil Manuel F, Toro-GutiÉrrez Carlos Enrique, Legge Alexandra, Duarte-Garcia Ali, Chasset François, Parodis Ioannis, Baumgaertner Katia, Chiche Laurent, Monticielo Odirlei A, Oyoo Omondi, Faria Raquel, Izuka Shinji, Silva-Ribeiro Sofia, Togizbayev Galymzhan, Opris-Belinski Daniela, El Kibbi Lina, Aggarwal Amita, Maheswaranathan Mithu, Lee Tai-Ju, Achieng Sheilla, Shumilova Anastasiia, Cervera Ricard, Chehab Gamal, Parlindungan Faisal, Van Leuven Sander, Lerang Karoline, Andersen Jeanette, Marchiori Francesca, Karakikla-Mitsakou Zoe, Sordet Christelle, Arnaud Laurent, international SLAKE development group
Аннотация
METHODS: International healthcare professionals (HCPs) and patient representatives engaged in a multi-step process to: identify essential SLE knowledge domains, select key domains via rating, and generate an item bank of 394 questions across 11 domains, which was then adapted into 19 languages. For validation, participants completed 44 questions (including 33 randomly selected), with scores calculated for total knowledge and the 11 specific domains. Statistical analyses examined associations between scores and demographic, clinical, and educational variables.
RESULTS: SLAKE was used by 1182 SLE participants (1120 [94.8%] women, median age: 45 years [IQR: 35-54 years]), with a median SLE duration of 10 years (IQR: 4-20 years). The median SLAKE score was 37 (IQR: 34-40) of a maximum of 44 points while the median score across the 11 SLAKE domains ranged between 3 and 4 over a maximum of 4 points. There was a significant positive association between SLAKE score and SLE duration (p= 0.006), previous participation to a patient education course or a patient training for lupus (p< 0.0001) and the education level (p< 0.0001) but not with age (p= 0.48) or gender (p= 0.39).
CONCLUSION: SLAKE is a valid, multilingual, digital self-assessment tool that effectively measures essential SLE knowledge. Its randomized question bank and domain-specific scoring enable targeted education, ultimately supporting better disease management.