Proceedings of the 2016 Childhood Arthritis and Rheumatology Research Alliance (CARRA) Scientific Meeting : Toronto, Canada. 14-17 April 2016.
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Fotis Lampros, Shaikh Nur, Baszis Kevin, French Anthony, Tarr Phillip, Grevich Sriharsha, Lee Peggy, Ringold Sarah, Leroux Brian, Leahey Hannah, Yuasa Megan, Foster Jessica, Sokolove Jeremy, Lahey Lauren, Robinson William, Newsom Joshua, Stevens Anne, Karasawa Rie, Tamaki Mayumi, Tanaka Megumi, Sato Toshiko, Yudoh Kazuo, Jarvis James N., Moncrieffe Halima, Bennett Mark F., Tsoras Monica, Luyrink Lorie, Xu Huan, Prahalad Sampath, Morris Paula, Dare Jason, Nigrovic Peter A., Rosenkranz Margalit, Becker Mara, O’Neil Kathleen M., Griffin Thomas, Lovell Daniel J., Grom Alexei A., Medvedovic Mario, Thompson Susan D., Zhu Lisha, Jiang Kaiyu, Wong Laiping, Buck Michael J, Chen Yanmin, Moncrieffe Halima, Brungs Laura, Liu Tao, Wang Ting, Jarvis James N, Alsaeid Khaled, Alfailakawi Jasim, Alenezi Hamid, Alsaeed Hazim, Beukelman Tim, Natter Marc, Ilowite Norm, Mieszkalski Kelly, Burrell Grendel, Best Brian, Bristow Helen, Carr Shannon, Dennos Anne, Kaufmann Rachel, Kimura Yukiko, Schanberg Laura, Blier Peter R., Boneparth Alexis, Wenderfer Scott E., Moorthy L. Nandini, Radhakrishna Suhas M., Sagcal-Gironella Anna Carmela P., von Scheven Emily, Gedik Kader Cetin, Siddique Salma, Aguiar Cassyanne L., Erkan Doruk, Cohen Ezra, Lee Yvonne, Dossett Michelle, Mehta Darshan, Davis Roger, Gilbert Mileka, Goilav Beatrice, Meidan Esra, Hsu Joyce, Boneparth Alexis, Chua Anabelle, Ardoin Stacy, Wenderfer Scott E., Von Scheven Emily, Ruth Natasha M., Hui-Yuen Joyce, Gedik Kader Cetin, Bermudez Liza, Cook Ashlea, Imundo Lisa, Starr Amy, Eichenfield Andrew, Askanase Anca, Janow Ginger, Schanberg Laura E., Setoguchi Soko, Hasselblad Victor, Mellins Elizabeth D., Schneider Rayfel, Kimura Yukiko, The CARRA Legacy Registry Investigators, Kimura Yukiko, Grevich Sriharsha, Beukelman Timothy, Morgan Esi, Graham T. Brent, Ibarra Maria, Ruas Yonit Sterba, Klein-Gitelman Marisa, Onel Karen, Prahalad Sampath, Punaro Marilynn, Ringold Sarah, Toib Dana, Van Mater Heather, Weiss Jennifer E., Weiss Pamela F., Mieszkalski Kelly, Schanberg Laura E., Kwok Timothy S. H., Bisaillon Jacinthe, Smith Christine, Brosseau Lucie, Stinson Jennifer, Huber Adam M., Duffy Ciaran M., April Karine Toupin, Lewandowski Laura B., Scott Christiaan, Li Suzanne C., Torok Kathryn S., Rabinovich C. Egla, Hong Sandy D., Becker Mara L, Dedeoglu Fatma, Ibarra Maria F., Ferguson Polly J, Fuhbrigge Rob C., Stewart Katie G., Pope Elena, Laxer Ronald M., Mason Thomas G., Higgins Gloria C., Li Xiaohu, Punaro Marilynn G., Tomlinson George, Pullenayegum Eleanor, Matelski John, Schanberg Laura, Feldman Brian M., Manthiram Kalpana, Correa Hernan, Edwards Kathryn, Oberle Edward J., Bayer Michelle, Co Dominic O., Baris Hatice Ezgi, Chiu Yvonne, Huber Adam, Kim Susan, Oberle Edward J., Beukelman Timothy, Orandi Amir B., Baszis Kevin W., Dharnidharka Vikas, Hoeltzel Mark F., for the CARRA JDM Committee, Reed Ann, Huber Adam, Tomlinson George, Pullenayegum Eleanor, Matelski John, Goh Y. Ingrid, Schanberg Laura, Feldman Brian M., Schnabel Anja, Range Ursula, Hahn Gabriele, Siepmann Timo, Berner Reinhard, Hedrich Christian Michael, Stevens Brandi, Torok Kathryn S., Li Suzanne, Hershey Nicole, Curran Megan, Higgins Gloria, Moore Katharine, Rabinovich Egla, Stevens Anne M., for the CARRA Registry Investigators, Stinson Jennifer, Connelly Mark, Huber Adam, Luca Nadia, Spiegel Lynn, Tsimicalis Argerie, Luca Stephanie, Tajuddin Naweed, Berard Roberta, Barsalou Julia, Campillo Sarah, Dancey Paul, Duffy Ciaran, Feldman Brian, Johnson Nicole, McGrath Patrick, Shiff Natalie, Tse Shirley, Tucker Lori, Victor Charles, Stinson Jennifer, Lalloo Chitra, Harris Lauren, Cafazzo Joseph, Spiegel Lynn, Feldman Brian, Luca Nadia, Laxer Ronald, Bullock Danielle R., Vehe Richard K., Zhang Lei, Correll Colleen K., Ganguli Suhas, Shenberger Max, Korumilli Ritesh, Gottlieb Beth, Rodriguez Martha, de Ranieri Deirdre, Onel Karen, Wagner-Weiner Linda, Tesher Melissa, Wojcicki Elizabeth Roth, Maletta Kristyn L., Co Dominic O., Malloy Marsha, Thomson Sarah, Olson Judyann C., Wenderfer Scott E., Gilbert Mileka, Hsu Joyce, Sule Sangeeta, Rubinstein Tamar B., Goilav Beatrice, Okamura Daryl M., Chua Annabelle, Greenbaum Laurence A., Lane Jerome C., von Scheven Emily, Ardoin Stacy P., Ruth Natasha M., Woo Jennifer M. P., Malloy Marsha M., Jegers James A., Hahn Dustin J., Hintermeyer Mary K., Martinetti Stacey M., Heckel Gretchen R., Roth-Wojcicki Elizabeth L., Co Dominic O.
Аннотация
P1 Serologic evidence of gut-driven systemic inflammation in juvenile idiopathic arthritis Lampros Fotis, Nur Shaikh, Kevin Baszis, Anthony French, Phillip Tarr P2 Oral health and anti-citrullinated peptide antibodies (ACPA) in juvenile idiopathic arthritis Sriharsha Grevich, Peggy Lee, Sarah Ringold, Brian Leroux, Hannah Leahey, Megan Yuasa, Jessica Foster, Jeremy Sokolove, Lauren Lahey, William Robinson, Joshua Newsom, Anne Stevens P3 Novel autoantigens for endothelial cell antibodies in pediatric rheumatic diseases identified by proteomics Rie Karasawa, Mayumi Tamaki, Megumi Tanaka, Toshiko Sato, Kazuo Yudoh, James N. Jarvis P4 Transcriptional profiling reveals monocyte signature associated with JIA patient poor response to methotrexate Halima Moncrieffe, Mark F. Bennett, Monica Tsoras, Lorie Luyrink, Huan Xu, Sampath Prahalad, Paula Morris, Jason Dare, Peter A. Nigrovic, Margalit Rosenkranz, Mara Becker, Kathleen M. O’Neil, Thomas Griffin, Daniel J. Lovell, Alexei A. Grom, Mario Medvedovic, Susan D. Thompson P5 A multi-dimensional genomic map for polyarticular juvenile idiopathic arthritis Lisha Zhu, Kaiyu Jiang, Laiping Wong, Michael J Buck, Yanmin Chen, Halima Moncrieffe, Laura Brungs, Tao Liu, Ting Wang, James N Jarvis P6 Tocilizumab for treatment of children with refractory JIA Khaled Alsaeid, Jasim Alfailakawi, Hamid Alenezi, Hazim Alsaeed P7 Clinical characteristics of the initial patients enrolled in the Childhood Arthritis and Rheumatology Research Alliance (CARRA) Registry Tim Beukelman, Marc Natter, Norm Ilowite, Kelly Mieszkalski, Grendel Burrell, Brian Best, Helen Bristow, Shannon Carr, Anne Dennos, Rachel Kaufmann, Yukiko Kimura, Laura Schanberg P8 Comparative performance of small and large clinical centers in a comprehensive pediatric rheumatology disease registry Peter R Blier P9 Clinical characteristics of children with membranous lupus nephritis: The Childhood Arthritis and Rheumatology Research Alliance Legacy Registry Alexis Boneparth, Scott E. Wenderfer, L. Nandini Moorthy, Suhas M. Radhakrishna, Anna Carmela P. Sagcal-Gironella, Emily von Scheven P10 Rituximab use in pediatric lupus anticoagulant hypoprothrombinemia syndrome - a two center experience Kader Cetin Gedik, Salma Siddique, Cassyanne L. Aguiar, Doruk Erkan P11 Predictors of complementary and alternative medicine use and response in children with musculoskeletal conditions Ezra Cohen, Yvonne Lee, Michelle Dossett, Darshan Mehta, Roger Davis P12 Comparison of pediatric rheumatology and nephrology survey results for the treatment of refractory proliferative lupus nephritis and renal flare in juvenile SLE Mileka Gilbert, Beatrice Goilav, Esra Meidan, Joyce Hsu, Alexis Boneparth, Anabelle Chua, Stacy Ardoin, Scott E. Wenderfer, Emily Von Scheven, Natasha M. Ruth P13 Transitioning lupus patients from pediatric to adult rheumatology Joyce Hui-Yuen, Kader Cetin Gedik, Liza Bermudez, Ashlea Cook, Lisa Imundo, Amy Starr, Andrew Eichenfield, Anca Askanase P14 The systemic juvenile idiopathic arthritis cohort of the Childhood Arthritis & Rheumatology Research Alliance Registry Ginger Janow, Laura E. Schanberg, Soko Setoguchi, Victor Hasselblad, Elizabeth D. Mellins, Rayfel Schneider, Yukiko Kimura, The CARRA Legacy Registry Investigators P15 Results of the pilot study of the Childhood Arthritis and Rheumatology Research Alliance (CARRA) consensus treatment plans for new-onset systemic juvenile idiopathic arthritis Yukiko Kimura, Sriharsha Grevich, Timothy Beukelman, Esi Morgan, T Brent Graham, Maria Ibarra, Yonit Sterba Ruas, Marisa Klein-Gitelman, Karen Onel, Sampath Prahalad, Marilynn Punaro, Sarah Ringold, Dana Toib, Heather Van Mater, Jennifer E. Weiss, Pamela F. Weiss, Kelly Mieszkalski, Laura E. Schanberg P16 A systemic review of pain relief modalities in juvenile idiopathic arthritis: First step in developing a novel decision support intervention Timothy S. H. Kwok, Jacinthe Bisaillon, Christine Smith, Lucie Brosseau, Jennifer Stinson, Adam M. Huber, Ciaran M. Duffy, Karine Toupin April P17 Barriers and facilitators to care retention for pediatric systemic lupus erythematous patients in South Africa: A qualitative study Laura B Lewandowski, Christiaan Scott P18 Evaluating the feasibility of conducting comparative effectiveness studies in juvenile Localized Scleroderma (jLS) Suzanne C. Li, Kathryn S. Torok, C. Egla Rabinovich, Sandy D. Hong, Mara L Becker, Fatma Dedeoglu, Maria F. Ibarra, Polly J Ferguson, Rob C. Fuhbrigge, Katie G. Stewart, Elena Pope, Ronald M. Laxer, Thomas G. Mason, Gloria C. Higgins, Xiaohu Li, Marilynn G. Punaro, George Tomlinson, Eleanor Pullenayegum, John Matelski, Laura Schanberg, Brian M. Feldman P19 Tonsillar histology in patients with periodic fever, aphthous stomatitis, pharyngitis, adenitis (PFAPA) syndrome Kalpana Manthiram, Hernan Correa, Kathryn Edwards P20 Clinical course of juvenile dermatomyositis presenting as skin predominant disease Edward J. Oberle, Michelle Bayer, Dominic O. Co, Hatice Ezgi Baris, Yvonne Chiu, Adam Huber, Susan Kim P21 A Survey of musculoskeletal ultrasound practices of pediatric rheumatologists in North America Edward J Oberle, Timothy Beukelman P22 Assessment, classification and treatment of calcinosis as a complication of juvenile dermatomyositis: A survey of pediatric rheumatologists by the Childhood Arthritis and Rheumatology Research Alliance Amir B. Orandi, Kevin W. Baszis, Vikas Dharnidharka, Mark F. Hoeltzel, for the CARRA JDM Committee P23 CARRA dermatomyositis CTP pilot study Ann Reed, Adam Huber, George Tomlinson, Eleanor Pullenayegum, John Matelski, Y. Ingrid Goh, Laura Schanberg, Brian M. Feldman P24 Unexpectedly high incidences and prolonged disease activity in children with chronic non-bacterial osteomyelitis (CNO) as compared to bacterial osteomyelitis Anja Schnabel, Ursula Range, Gabriele Hahn, Timo Siepmann, Reinhard Berner, Christian Michael Hedrich P25 Juvenile systemic sclerosis cohort within the Childhood Arthritis and Rheumatology Research Alliance (CARRA) Legacy Registry: Follow up characteristics Brandi Stevens, Kathryn S. Torok, Suzanne Li, Nicole Hershey, Megan Curran, Gloria Higgins, Katharine Moore, Egla Rabinovich, Anne M. Stevens, for the CARRA Registry Investigators P26 Development and usability testing of an iPad and desktop psycho-educational game for children with Juvenile Idiopathic Arthritis and their parents Jennifer Stinson, Mark Connelly, Adam Huber, Nadia Luca, Lynn Spiegel, Argerie Tsimicalis, Stephanie Luca, Naweed Tajuddin, Roberta Berard, Julia Barsalou, Sarah Campillo, Paul Dancey, Ciaran Duffy, Brian Feldman, Nicole Johnson, Patrick McGrath, Natalie Shiff, Shirley Tse, Lori Tucker, Charles Victor P27 iCanCopeTM: User-centred design and development of a smartphone app to support self-management for youth with arthritis pain Jennifer Stinson, Chitra Lalloo, Lauren Harris, Joseph Cafazzo, Lynn Spiegel, Brian Feldman, Nadia Luca, Ronald Laxer P28 Accessing pediatric rheumatology care: Despite barriers, few parents prefer telemedicine Danielle R. Bullock, Richard K. Vehe, Lei Zhang, Colleen K. Correll1 P29 Exploration of factors contributing to time to achieve clinically inactive disease (CID) in juvenile idiopathic arthritis (JIA): A preliminary report Suhas Ganguli, Max Shenberger, Ritesh Korumilli, Beth Gottlieb P30 Pediatric rheumatology referral patterns: Presenting complaints of new patients at a large, urban academic center Martha Rodriguez, Deirdre de Ranieri, Karen Onel, Linda Wagner-Weiner, Melissa Tesher P31 Quality improvement (QI) initiatives in childhood systemic lupus erythematosus (cSLE) Elizabeth Roth Wojcicki, Kristyn L. Maletta, Dominic O. Co, Marsha Malloy, Sarah Thomson, Judyann C. Olson P32 Proliferative lupus nephritis in juvenile SLE: Support from the pediatric nephrology community for the definitions of responsiveness and flare in the 2012 consensus treatment plans Scott E. Wenderfer, Mileka Gilbert, Joyce Hsu, Sangeeta Sule, Tamar B. Rubinstein, Beatrice Goilav, Daryl M. Okamura, Annabelle Chua, Laurence A. Greenbaum, Jerome C. Lane, Emily von Scheven, Stacy P. Ardoin, Natasha M. Ruth P33 The steroid taper app: Making of a mobile app Jennifer M. P. Woo, Marsha M. Malloy, James A. Jegers, Dustin J. Hahn, Mary K. Hintermeyer, Stacey M. Martinetti, Gretchen R. Heckel, Elizabeth L. Roth-Wojcicki, Dominic O. Co