Disability and rehabilitation · 2026
Living with congenital scoliosis: a qualitative phenomenological study of Chinese adolescents receiving corrective surgery.
СтатьяНазвание и аннотация: Перевод в очереди
Обработка статьи · этапы, ошибки и управление
Загрузка состояния…
Ошибки и ограничения
История · было → стало
Состояние обновляется каждые 5 секунд, пока блок открыт. Процент показывается только там, где известен объём работы. Пауза останавливает продолжение этапа; текущий запрос к источнику может завершиться.
Chen Tao, Li Qiang, Chen Yong, Zhang Wenjing, Yang Jindong, Liang Mengqiu, Pu Chun, Lei Xue, Zhao Deng
Аннотация
PURPOSE: To explore how adolescents with congenital scoliosis receiving tertiary corrective care describe daily life, social relationships, emotional adaptation, and treatment.
MATERIALS/METHODS: Qualitative phenomenological interviews were conducted face-to-face in a Chinese tertiary referral hospital (Oct 2023 to Jan 2024). Adolescents aged 12-18 years were purposively sampled. Recordings were transcribed verbatim and analyzed using Colaizzi's seven-step method with team coding and member checking.
RESULTS: Eleven adolescents (mean age 14.6 years; 45.5% female) participated; nine had undergone corrective surgery. Four themes emerged: (1) surgery as restoration of participation (schooling, mobility, breathing comfort) despite perioperative fear, pain, and recovery burden; (2) function and quality of life prioritized over scarring, although some voiced appearance-related worries; (3) peer and family life described as largely ordinary, with overt stigmatization infrequently reported and often framed as minor; (4) emotional resilience and rejection of a tragedy framing, including contrasts between adolescent self-appraisal and adult worry.
CONCLUSION: In this tertiary-care cohort, adolescents centered participation and ordinariness more than stigma or sadness. Care and research should prioritize adolescent-defined outcomes and avoid presuming psychosocial distress as a default.
MATERIALS/METHODS: Qualitative phenomenological interviews were conducted face-to-face in a Chinese tertiary referral hospital (Oct 2023 to Jan 2024). Adolescents aged 12-18 years were purposively sampled. Recordings were transcribed verbatim and analyzed using Colaizzi's seven-step method with team coding and member checking.
RESULTS: Eleven adolescents (mean age 14.6 years; 45.5% female) participated; nine had undergone corrective surgery. Four themes emerged: (1) surgery as restoration of participation (schooling, mobility, breathing comfort) despite perioperative fear, pain, and recovery burden; (2) function and quality of life prioritized over scarring, although some voiced appearance-related worries; (3) peer and family life described as largely ordinary, with overt stigmatization infrequently reported and often framed as minor; (4) emotional resilience and rejection of a tragedy framing, including contrasts between adolescent self-appraisal and adult worry.
CONCLUSION: In this tertiary-care cohort, adolescents centered participation and ordinariness more than stigma or sadness. Care and research should prioritize adolescent-defined outcomes and avoid presuming psychosocial distress as a default.