Epilepsy & behavior : E&B · 2026
Evaluation of the chronic disease self-management program in adults with epilepsy in a nationwide community network.
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Brocker Cate, Long Cara, Gilchrist Brian, Lessington Shelkecia, Thompson Hillary, Fureman Brandy E
Аннотация
BACKGROUND: Self-management is important for effective care for people living with epilepsy. The Chronic Disease Self-Management Program (CDSMP) is an evidence-based program that improves health outcomes and lifestyle behaviors in chronic diseases such as diabetes, hypertension, heart disease, stroke, and arthritis. We describe initial results from a program evaluation of the CDSMP in adults with epilepsy.
METHODS: The Epilepsy Foundation of America (EFA) recruited adults with epilepsy to participate in the CDSMP through its nationwide community network. The program included 6 workshops held weekly online or by phone and led by trained facilitators. At program outset and at 1 and 6 months after completion, participants reported on measures of epilepsy self-management (Epilepsy Self-Management Scale, ESMS), self-efficacy (Self-Efficacy for Managing Chronic Disease, SEMCD), depression (Patient Health Questionnaire-8, PHQ-8), and self-rated health. Participants and EFA sites delivering the program in their communities provided qualitative feedback.
RESULTS: Across 8 EFA sites, 99 adults with epilepsy completed the CDMSP. Evaluation measure scores at 1 and 6 months after program completion showed improvement in epilepsy self-management, self-efficacy, and depression, but no change in self-rated health. Feedback from staff, facilitators, and participants suggested the program was well-received and recommended strategies to strengthen planning, recruitment, and delivery.
CONCLUSION: The CDSMP can be implemented in a community-based network for adults living with epilepsy. Initial participant outcomes suggest that program completion is associated with improvements in epilepsy self-management, self-efficacy, and depression. The CDSMP is a beneficial addition to community-based resources that promote disease self-management in adults with epilepsy.
METHODS: The Epilepsy Foundation of America (EFA) recruited adults with epilepsy to participate in the CDSMP through its nationwide community network. The program included 6 workshops held weekly online or by phone and led by trained facilitators. At program outset and at 1 and 6 months after completion, participants reported on measures of epilepsy self-management (Epilepsy Self-Management Scale, ESMS), self-efficacy (Self-Efficacy for Managing Chronic Disease, SEMCD), depression (Patient Health Questionnaire-8, PHQ-8), and self-rated health. Participants and EFA sites delivering the program in their communities provided qualitative feedback.
RESULTS: Across 8 EFA sites, 99 adults with epilepsy completed the CDMSP. Evaluation measure scores at 1 and 6 months after program completion showed improvement in epilepsy self-management, self-efficacy, and depression, but no change in self-rated health. Feedback from staff, facilitators, and participants suggested the program was well-received and recommended strategies to strengthen planning, recruitment, and delivery.
CONCLUSION: The CDSMP can be implemented in a community-based network for adults living with epilepsy. Initial participant outcomes suggest that program completion is associated with improvements in epilepsy self-management, self-efficacy, and depression. The CDSMP is a beneficial addition to community-based resources that promote disease self-management in adults with epilepsy.