Характеристики и ожидания людей с множественным склерозом, использующих дополнительную терапию: перекрестное обследование на основе регистра нескольких склерозов.
Обработка статьи · этапы, ошибки и управление
Ошибки и ограничения
История · было → стало
Состояние обновляется каждые 5 секунд, пока блок открыт. Процент показывается только там, где известен объём работы. Пауза останавливает продолжение этапа; текущий запрос к источнику может завершиться.
Lopez-Alcalde Jesus, Steinemann Nina, Moll Hannah, Canella Claudia, Barth Jürgen, Haegele-Link Stefan, Bolt Sarah, Baum Claudia, Grob Gabriela Rettenmund, Yan Yuqian, von Wyl Viktor, Witt Claudia M, Swiss Multiple Sclerosis Registry (SMSR)
Аннотация
Оригинал публикации
Characteristics and expectations of people with multiple sclerosis using complementary therapies: A cross-sectional survey from the swiss multiple sclerosis registry.
BACKGROUND: Understanding the characteristics and expectations of people with multiple sclerosis (pwMS) who utilize complementary therapies can help integrate these therapies into conventional care.
OBJECTIVES: To describe the characteristics of pwMS who use complementary therapies, their general reasons and targeted symptoms, and their expectations regarding the effects of these therapies.
METHODS: A cross-sectional survey of pwMS from the Swiss Multiple Sclerosis Registry was conducted from October 2022 to August 2023.
RESULTS: 888 pwMS participated (39.3 % participation rate). 48.2 % had used complementary therapies in the last six months. The most typical reasons were to improve quality of life (43.9 %) and alleviate MS symptoms (37.8 %). Participants expected manual therapies and natural substances to be most effective for physiological complaints, with median effectiveness scores of 7 (interquartile range [IQR]: 5-9 and 5-8). Mind-body therapies and natural substances were also expected to be the most effective for psychological complaints (median of 7 and 6, IQR: 3.5-8 and 3-8). Complementary therapies were considered safe (median safety scores ranging from 7 to 9).
CONCLUSIONS: PwMS frequently use complementary therapies, and their reasons and expectations can differ. Understanding the characteristics of pwMS who use complementary therapies, their reasons for use, and their expectations can support tailoring MS treatment.