Seminars in arthritis and rheumatism · 2023
Patient outcomes in longitudinal observational studies (POLOS) of rheumatoid arthritis: Determining the OMERACT core domain set.
СтатьяНаблюдательное исследованиеНазвание и аннотация: Перевод в очереди
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Benavent Diego, Carmona Loreto, Lopez-Olivo Maria A, Hill Catherine L, Westrich-Robertson Tiffany, Goel Niti, Strand Vibeke, Shea Beverley, Grosskleg Shawna, Leong Amye, Hofstetter Catherine, Bingham Clifton, Meyer Daniel, Constien Deb, Berthelsen Dorthe B, Schultz Grayson, de Groot Ingrid, Weiner Joan, Mather Kate, de Wit Maarten, Böhm Peter, Cembalo Sam Michel, Tugwell Peter, Bruera Sebastian, Suarez-Almazor Maria E
Аннотация
OBJECTIVE: To define and select rheumatoid arthritis (RA)-specific core domain set for Longitudinal Observational Studies (LOS) within the Outcome Measures in Rheumatology (OMERACT) framework.
METHODS: A three-round online Delphi exercise, including patient research partners (PRPs) and other community partners in healthcare, was conducted. Domains scored 7-9 (i.e., critically important to include) by ≥ 70 % of participants in both groups were included. Items were consolidated in a subsequent dedicated meeting.
RESULTS: Nineteen domains scored ≥ 70 % consensus in both groups. The focus group refined these into a list of twelve domains.
CONCLUSION: The achieved consensus will inform the next steps of developing the core domain set for LOS in RA.
METHODS: A three-round online Delphi exercise, including patient research partners (PRPs) and other community partners in healthcare, was conducted. Domains scored 7-9 (i.e., critically important to include) by ≥ 70 % of participants in both groups were included. Items were consolidated in a subsequent dedicated meeting.
RESULTS: Nineteen domains scored ≥ 70 % consensus in both groups. The focus group refined these into a list of twelve domains.
CONCLUSION: The achieved consensus will inform the next steps of developing the core domain set for LOS in RA.