Patient preference and adherence · 2025
Barriers and Facilitators in Proxy Decision-Making for Financial Support in Adolescent Idiopathic Scoliosis: A Qualitative Study of Family Caregivers Using the COM-B Model.
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Liu Sihui, Hu Kaili, Rui Huazhen, Gao Yi, Zhan Xue
Аннотация
PURPOSE: This study aimed to explore the barriers and facilitators faced by family caregivers in proxy decision-Making for financial support in patients with adolescent idiopathic scoliosis (AIS).
PATIENTS AND METHODS: This qualitative study utilized the Capability, Opportunity, Motivation-Behavior (COM-B) model to examine the factors that influence family caregivers' proxy decision-Making regarding financial support for patients with AIS. Eighteen caregivers were interviewed using semi-structured interviews. The data were analyzed using MAXQDA software and Braun and Clarke's thematic analysis.
RESULTS: The key facilitators identified included financial relief, trust in the legitimacy and reputation of charitable organizations, and family and social support. Barriers included lack of knowledge and practical skills, emotional and physical exhaustion, privacy concerns, particularly related to the patient's future educational opportunities, and the complexity of application procedures.
CONCLUSION: This study underscores the importance of addressing the barriers caregivers face, such as complex application processes and emotional stress, while enhancing facilitators like financial support and trust in organizations. Streamlining application procedures and improving transparency can enhance caregivers' ability to access financial resources, benefiting both patients and their families.
PATIENTS AND METHODS: This qualitative study utilized the Capability, Opportunity, Motivation-Behavior (COM-B) model to examine the factors that influence family caregivers' proxy decision-Making regarding financial support for patients with AIS. Eighteen caregivers were interviewed using semi-structured interviews. The data were analyzed using MAXQDA software and Braun and Clarke's thematic analysis.
RESULTS: The key facilitators identified included financial relief, trust in the legitimacy and reputation of charitable organizations, and family and social support. Barriers included lack of knowledge and practical skills, emotional and physical exhaustion, privacy concerns, particularly related to the patient's future educational opportunities, and the complexity of application procedures.
CONCLUSION: This study underscores the importance of addressing the barriers caregivers face, such as complex application processes and emotional stress, while enhancing facilitators like financial support and trust in organizations. Streamlining application procedures and improving transparency can enhance caregivers' ability to access financial resources, benefiting both patients and their families.