La Tunisie medicale · 2025
[Perceived experience of patients with Systemic lupus erythematosus towards the announcement of the diagnosis: Series of 50 observations].
Аннотация на английскомСтатьяНазвание и аннотация: Перевод в очереди
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Aydi Zohra, Rachdi Imène, Boukhzar Rihem, Soli Arij, Somai Mehdi, Arbaoui Ibrahim, Ben Dhaou Besma, Daoud Fatma, Boussema Fatma
Аннотация
INTRODUCTION: The announcement of a chronic autoimmune disease is a delicate situation in our practice. The main objective of our work was to explore the felt experience of the lupus patient when faced with the announcement of the disease.
METHODS: Qualitative prospective study carried out from individual interviews with patients. suffering from SLE and followed in a department of internal medicine.
RESULTS: We collected 60 patients (50 women and 10 men). The average age was 44.6 years. Thirty-five (65%) were married. The diagnosis was announced by an internist in 66% of cases. At the announcement of the diagnosis, 70% were hospitalized, alone (48%) and in the presence of a loved one (51%). The announcement took place in the doctor's office in 40%. The duration of the announcement of the diagnosis was sufficient (56%). The doctor offered a second close consultation to complete the information (18%). The initial reaction was acceptance (54%), despair (31%), denial and refusal to disclose the diagnosis (3 cases). Around 36% thought that a consultation with a psychiatrist is necessary. The presence of a loved one is useful (45%). Patients suggested giving more information about the disease (58%), its progress (36%) and the treatment (5%). The analytical study showed that patients accept the diagnosis of SLE better when they are supported (P=0.026), married (P=0.01) and when the duration of the announcement is sufficient (P=0.045).
CONCLUSION: The announcement of the diagnosis of systemic lupus erythematosus must be made under appropriate conditions, clear and complete. Personal satisfaction, however, remains subjective.
METHODS: Qualitative prospective study carried out from individual interviews with patients. suffering from SLE and followed in a department of internal medicine.
RESULTS: We collected 60 patients (50 women and 10 men). The average age was 44.6 years. Thirty-five (65%) were married. The diagnosis was announced by an internist in 66% of cases. At the announcement of the diagnosis, 70% were hospitalized, alone (48%) and in the presence of a loved one (51%). The announcement took place in the doctor's office in 40%. The duration of the announcement of the diagnosis was sufficient (56%). The doctor offered a second close consultation to complete the information (18%). The initial reaction was acceptance (54%), despair (31%), denial and refusal to disclose the diagnosis (3 cases). Around 36% thought that a consultation with a psychiatrist is necessary. The presence of a loved one is useful (45%). Patients suggested giving more information about the disease (58%), its progress (36%) and the treatment (5%). The analytical study showed that patients accept the diagnosis of SLE better when they are supported (P=0.026), married (P=0.01) and when the duration of the announcement is sufficient (P=0.045).
CONCLUSION: The announcement of the diagnosis of systemic lupus erythematosus must be made under appropriate conditions, clear and complete. Personal satisfaction, however, remains subjective.