International journal of environmental research and public health · 2022
Nursing Care Plan for Patients with Hajdu-Cheney Syndrome.
СтатьяНазвание и аннотация: Перевод в очереди
Обработка статьи · этапы, ошибки и управление
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Cortés-Martín Jonathan, Díaz-Rodríguez Lourdes, Piqueras-Sola Beatriz, Sánchez-García Juan Carlos, Menor-Rodríguez María José, Rodríguez-Blanque Raquel
Аннотация
Hajdu-Cheney syndrome is a rare genetic disease. Its main features include phenotypic variability, age-dependent progression and the presence of acroosteolysis of the distal phalanges and generalized osteoporosis, which have significant disabling potential. Currently, there is no effective curative treatment, so nursing care is essential to ensure the maintenance of the quality of life of these patients. The main objective of this study was to establish a specific standardized nursing care plan using the NANDA-NIC-NOC taxonomy. The application of a care plan as such would improve the quality of life of patients affected by this rare disease, will contribute to increasing healthcare professionals' knowledge on this matter and will support future studies on this disease.