Vitales project: Consensus on measuring health outcomes for better integrated management of patients with systemic lupus erythematosus.

INTRODUCTION

Systemic lupus erythematosus (SLE) is one of the most common systemic autoimmune diseases. It presents with a heterogeneous clinical picture and can cause irreversible damage. Its clinical manifestations vary over time, affecting different organs. This variability makes it complex but necessary to monitor, in a standardised and objective way, the manifestations of the disease through validated instruments that determine the degree of activity and the damage associated with the disease.

OBJECTIVE

To define, through a national consensus, the standardisation of the measurement of health outcomes in SLE with the aim of improving the comprehensive control of patients with this disease.

CONCLUSIONS

The measurement of health outcomes in three major domains: disease activity, disease burden and quality of life, could help improve the control of the disease in patients with SLE from a comprehensive perspective, as well as obtaining information on the established therapeutic objectives and therefore allowing better clinical decisions to be made.