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DOI 10.1186/s42358-021-00168-6

Медицинская библиотека · Advances in rheumatology (London, England) · 2021

Psoriatic Arthritis Quality of Life Questionnaire: translation, cultural adaptation and validation into Brazilian Portuguese language.

Gonçalves Rafaela Silva Guimaraes, Heaney Alice, McKenna Stephen P, Carvalho Jonas Braynner, Vidal Maria Eduarda Lima, de Brito Marina Coelho Mores, Duarte Angela Luzia Branco Pinto

СтатьяВалидационное исследованиеПеревод в очереди

Аннотация

INTRODUCTION

Psoriatic arthritis (PsA) is a multifaceted inflammatory disease that can cause joint destruction and impair quality of life. The Psoriatic Arthritis Quality of Life Questionnaire (PsAQoL) was the first disease-specific tool for determining the impact of the disease on the quality of life of people with PsA.

OBJECTIVES

The primary objective was to develop and validate a Brazilian Portuguese version of the PsAQoL.

METHODS

The UK PsAQoL was translated into Brazilian Portuguese using two translation panels. This translation then checked for face validity and construct validity with new samples of patients. Finally, a test-retest validation study was conducted with 52 patients with PsA. The survey included the Nottingham Health Profile (NHP) as a comparator instrument.

RESULTS

Internal consistency and reproducibility were both excellent for the new adaptation (0.91 and 0.90 respectively Scores on the PsAQoL were found to correlate as expected with the comparator measure and the instrument was able to detect differences in score related to perceived severity of PsA, general health status and presence of a flare.

CONCLUSION

The Brazilian PsAQoL was found easy to understand and complete and has excellent reliability and construct validity. The new measure will be a valuable new tool for use in routine PsA practice and clinical trials.

Для цитирования: Gonçalves Rafaela Silva Guimaraes, Heaney Alice, McKenna Stephen P, Carvalho Jonas Braynner, Vidal Maria Eduarda Lima, de Brito Marina Coelho Mores, Duarte Angela Luzia Branco Pinto. Psoriatic Arthritis Quality of Life Questionnaire: translation, cultural adaptation and validation into Brazilian Portuguese language.. Advances in rheumatology (London, England). 2021. DOI: 10.1186/s42358-021-00168-6.

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