Journal of palliative medicine · 2025
Unforeseen Changes after Discontinuing Artificial Nutrition in a Patient with Giant Encephalocele.
СтатьяКлинический случайНазвание и аннотация: Перевод в очереди
Обработка статьи · этапы, ошибки и управление
Загрузка состояния…
Ошибки и ограничения
История · было → стало
Состояние обновляется каждые 5 секунд, пока блок открыт. Процент показывается только там, где известен объём работы. Пауза останавливает продолжение этапа; текущий запрос к источнику может завершиться.
Latremouille Gabrielle S, Mosley Luke H, Whitford Brittney, Nee Krista
Аннотация
BACKGROUND: Infants born with occipital encephalocele carry a high morbidity and mortality risk. Palliative care plays a central role in their management, which is difficult due to variability in outcomes and prognosis.
CASE DESCRIPTION: An infant with an inoperable giant occipital who had remained admitted to the hospital since birth experienced a progressive decline in mental status and quality of life. Her family made the decision to stop enteral nutrition at 18 months of age. In contrast to the expectation of progressive fading of consciousness, the patient became increasingly alert and agitated with notable improvement in neurological status. Simultaneously, her encephalocele significantly decreased in size.
CONCLUSIONS: The patient's protracted end-of-life course with signs of sustained hydration, along with improved mentation and encephalocele size reduction, suggests that fluid within the defect was systemically resorbed. This case demonstrates how individual disease pathophysiology can impact the end-of-life course.
CASE DESCRIPTION: An infant with an inoperable giant occipital who had remained admitted to the hospital since birth experienced a progressive decline in mental status and quality of life. Her family made the decision to stop enteral nutrition at 18 months of age. In contrast to the expectation of progressive fading of consciousness, the patient became increasingly alert and agitated with notable improvement in neurological status. Simultaneously, her encephalocele significantly decreased in size.
CONCLUSIONS: The patient's protracted end-of-life course with signs of sustained hydration, along with improved mentation and encephalocele size reduction, suggests that fluid within the defect was systemically resorbed. This case demonstrates how individual disease pathophysiology can impact the end-of-life course.