The Journal of craniofacial surgery · 2025
'FACE ME'-The Impact and Value of an Arts-Based Project About the Patient-Parent-Clinician Relationship in European Reference Network CRANIO.
СтатьяПоддержка исследования: вне правительства СШАНазвание и аннотация: Перевод в очереди
Обработка статьи · этапы, ошибки и управление
Загрузка состояния…
Ошибки и ограничения
История · было → стало
Состояние обновляется каждые 5 секунд, пока блок открыт. Процент показывается только там, где известен объём работы. Пауза останавливает продолжение этапа; текущий запрос к источнику может завершиться.
Faasse Mariët, Groot-Sluijsmans Barbara C, Coopmans Aafke G, van de Bovenkamp Hester M, ERN CRANIO FACE ME Project Group
Аннотация
BACKGROUND: A good patient-clinician relationship is an important aspect of quality of care according to patients living with a rare congenital craniofacial condition and their parents. Despite efforts, the challenging question remains how to improve this relationship.
OBJECTIVE: The authors describe the value and impact of using arts-based methods as a catalyst for bringing the 2 'worlds' of patients and their parents and that of clinicians together.
METHODS: FACE ME, developed by 2 visual artists, consisted of reorganizing the house of a surgeon with a group of patients (n=3), surgeons (n=3), and a parent (n=1) resulting in 2 artworks. The following data were analyzed using reflexive thematic analysis: the film recording the process, photos of the artworks (i.e., end-results of 2 reorganizations), conversations and reflections of the project group involved, and survey results of respondents who watched the film and photos.
RESULTS: Four intertwined themes describe the impact and value of FACE ME: (1) importance of exchanging trust, (2) seeing each other as a person, (3) imagine standing in each other's shoes, and 4) working as a team. These themes represent both perspectives and their similarities in expectations of a good relationship, and findings were supported by the views of the project group and the audience watching the film.
CONCLUSION: FACE ME crossed the boundaries of clinicians, patients, and their parents, and created a better mutual understanding. This arts-based project started a different conversation, and reflection, changed mindsets, and provoked actions towards a better relationship.
OBJECTIVE: The authors describe the value and impact of using arts-based methods as a catalyst for bringing the 2 'worlds' of patients and their parents and that of clinicians together.
METHODS: FACE ME, developed by 2 visual artists, consisted of reorganizing the house of a surgeon with a group of patients (n=3), surgeons (n=3), and a parent (n=1) resulting in 2 artworks. The following data were analyzed using reflexive thematic analysis: the film recording the process, photos of the artworks (i.e., end-results of 2 reorganizations), conversations and reflections of the project group involved, and survey results of respondents who watched the film and photos.
RESULTS: Four intertwined themes describe the impact and value of FACE ME: (1) importance of exchanging trust, (2) seeing each other as a person, (3) imagine standing in each other's shoes, and 4) working as a team. These themes represent both perspectives and their similarities in expectations of a good relationship, and findings were supported by the views of the project group and the audience watching the film.
CONCLUSION: FACE ME crossed the boundaries of clinicians, patients, and their parents, and created a better mutual understanding. This arts-based project started a different conversation, and reflection, changed mindsets, and provoked actions towards a better relationship.