From Avoidance to Empowerment: Coping Strategies in Women With Müllerian agenesis (MRKH) After McIndoe Reconstruction: A Descriptive Phenomenological Study.

STUDY

OBJECTIVE

To explore coping strategies among women with Mayer-Rokitansky-Küster-Hauser (MRKH) syndrome following McIndoe vaginal reconstruction, focusing on how they adapt emotionally, cognitively, relationally, and spiritually.

METHODS

A descriptive phenomenological study was conducted at a tertiary university hospital in Türkiye. Ten women with MRKH syndrome who underwent McIndoe vaginoplasty were recruited. Data were collected through semi-structured, in-depth interviews and analyzed using Colaizzi's seven-step framework. Reporting adhered to the COREQ checklist.

RESULTS

Six overarching themes and twelve subthemes were identified:1 managing silence and avoidance,2 reframing and positive reappraisal,3 spiritual coping,4 relational dynamics of support and stigma,5 disclosure dilemmas, and6 pathways to empowerment. Coping strategies were dynamic, shifting from avoidance to eventual empowerment, and were shaped by family dynamics, cultural norms, spirituality, and relational contexts.

CONCLUSION

Coping following McIndoe reconstruction extends beyond surgical success to encompass psychological adjustment, relational support, and the creation of cultural and spiritual meaning. Holistic interventions-including psychoeducation, culturally sensitive counselling, family- and couple-based approaches, and structured peer networks-may strengthen resilience and promote well-being in this population.