Psychosocial Outcomes of the Stanford Orthodontic Airway Plate (OAP) Treatment in Caregivers and Children With Pierre Robin Sequence.

ObjectiveThis study assessed psychosocial outcomes in caregivers and quality of life (QoL) in children with Pierre Robin Sequence treated with the Stanford Orthodontic Airway Plate (OAP).DesignA cross-sectional survey was completed by caregivers of 30 OAP-treated children (age at survey: 1.5 ± 1.1 years).Main Outcome Measure(s): Eight open-ended questions and one-sample t tests for: Connor-Davidson Resilience Scale-10 (CD-RISC-10); Kessler Psychological Distress Scale-6 (K6); Perceived Stress Scale (PSS); and Pediatric QoL Inventory (PedsQL).ResultsThe mean CD-RISC-10 scores were similar to community samples. The K6 scores were significantly higher (Cohen d = 1.01), and PSS scores were lower (Cohen d = 0.82) than national averages. The mean PedsQL score was high (89.3 ± 8.4). While 78% of caregivers found OAP demanding, 68% indicated a preference for pursuing OAP earlier.ConclusionsCaregivers reported low stress and high child QoL along with moderate distress, suggestive of the need for ongoing psychosocial supports for caregivers.