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DOI 10.1590/1983-1447.2020.20190301

Медицинская библиотека · Revista gaucha de enfermagem · 2020

"Very busy": daily reorganization of mothers to care of children with Congenital Zika Syndrome.

Vale Paulo Roberto Lima Falcão do, Alves Deisyane Vitória, Carvalho Evanilda Souza de Santana

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Аннотация

OBJECTIVE

To understand the experiences and care practices of mothers of children with congenital Zika syndrome.

METHODS

A qualitative study with collection held in Feira de Santana - Bahia, between September and November 2017, from in-depth interviews and Story-Drawing with 11 family members of children, using thematic content analysis.

RESULTS

Mothers take care from experiences with health professionals and groups of mothers. They reorganize themselves in order to optimize time, streamline domestic activities, teach family members, and navigate care spaces. They experience the routine organizing the home, taking care of the children and, specifically, the child with syndrome, referring to: bedtime; giving a shower; changing diapers; feeding; playing; and, stimulating, actions mediated by intense crying and environmental preparation.

CONCLUSION

The experiences are unique and exceptional, conforming the social representation of the mothers as a group, the "mothers of micro", an aspect that differs from other experiences.

Для цитирования: Vale Paulo Roberto Lima Falcão do, Alves Deisyane Vitória, Carvalho Evanilda Souza de Santana. "Very busy": daily reorganization of mothers to care of children with Congenital Zika Syndrome.. Revista gaucha de enfermagem. 2020. DOI: 10.1590/1983-1447.2020.20190301.

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