Enhancing independence: Experiences of lower limb prosthesis users.

BACKGROUND

An aging society and the rise in peripheral arterial disease and diabetes mellitus generate a high prevalence of lower limb loss. Medical advancements extend lifespans and make effective rehabilitation necessary to preserve long-time mobility and independence. This study aims to explore the experiences of long-term prosthesis users, investigating the factors influencing their prosthetic mobility and the resulting impact on independence.

METHODS

Experienced prosthesis users were recruited from rehabilitation clinics and orthopedic companies and participated in focus group interviews. These interviews were transcribed verbatim and analyzed by systematic text condensation to identify themes.

RESULTS

Two main themes were identified: "The Goal of Prosthetic Mobility is Independence" and "Lack of Knowledge Threatens Mobility." Prosthesis users highly value independence, with prostheses being crucial for enabling freedom without reliance on others. However, this independence is fragile, as even minor issues concerning prosthetic components or impairments can affect mobility and independence. Health care professionals were often described as lacking in specialized knowledge in the complexities of long-time prosthetic care, which limits their support for prosthesis users. At the same time, peer expertise is highly valued for practical advice. Integrating peer expertise into education and rehabilitation programs appears essential for improving care.

CONCLUSIONS

The findings suggest a knowledge gap among health professionals that may threaten the mobility and independence of experienced prosthesis users. Although users develop their practical competence and skills by prosthetic use, health professionals make slight use of the opportunities to enhance their competence by listening to and collaborating with prosthesis users. By recognizing patients as experts in their bodies, their insights can complement and strengthen professional competence and lead to more effective rehabilitation.