Utility and Efficacy of a Virtual Normal Pressure Hydrocephalus Support Group.

OBJECTIVE

Normal pressure hydrocephalus (NPH) is a neurodegenerative process for which our team previously demonstrated the efficacy of an in-person NPH support group. However, in this study, we aimed to examine the educational benefits and efficacy of a virtual NPH support group.

METHODS

Monthly virtual meetings were held from July 2022 to June 2023 for NPH patients and their friends/families. The format of each meeting consisted of a physician-led presentation, question and answer sessions, group discussions, and polls to evaluate the meeting. The survey included questions to gather participant demographics and evaluate the benefits of education, emotional well-being, and virtual format.

RESULTS

Over one year, 11 virtual support group meetings were held and attended by 343 participants. The average survey ratings for gained knowledge, self-efficacy, and satisfaction ranged from 4.15 to 4.60 on a five-point scale, demonstrating strongly positive outcomes since a score above 3 is considered favorable. In this study, patients reported improved education, coping and communication skills, and emotional support. We also demonstrated high participant satisfaction and continued interest in meetings.

CONCLUSIONS

This study demonstrates that virtual, physician-led support groups can be effective in providing education, emotional, and peer support for NPH patients and their friends/families. Improved knowledge and accessibility to educational and social resources can improve patient health outcomes by improving adherence to physician recommendations.