Parental Perspectives on Oral Health and Access to Care in Children with Down Syndrome: A Narrative Review.

Background/

Objectives

Children with Down syndrome are predisposed to various oro-dental conditions, which can impact their oral-health-related quality of life (OHRQoL) and overall well-being. Given their critical role, parents' and caregivers' perceptions are essential for understanding the challenges in oral care access and quality. This narrative review aimed to synthesise the available evidence on parental and caregiver perceptions regarding oral health, OHRQoL, and dental care access for children with Down syndrome.

Methods

A literature search was conducted in PubMed, Web of Science, and Scopus, covering studies published between January 2015 and January 2025. The search included the keywords "Down syndrome", "oral health", "oral health-related quality of life", "caregivers", "parents", "dental care access", and "special needs children". Thirteen studies were included after applying eligibility criteria, which selected original research focusing on the target population and themes.

Results

The findings highlighted that oral health significantly affects the quality of life of children with Down syndrome, influencing their functional, emotional, and social well-being. Caregivers often reported a gap between perceived and clinically observed oral health. Barriers to dental care access included insufficient training of dental professionals, financial constraints, systemic limitations, and perceived biases. Variations across different countries also revealed the influence of cultural and healthcare system factors.

Conclusions

Oral health plays a critical role in the lives of children with Down syndrome and their families. Strengthening caregiver education, improving communication, validating adapted OHRQoL instruments, and enhancing dental professionals' training in special needs care are crucial steps to ensure equitable and family-centred oral healthcare.