Academic pediatrics · 2026
The Value of a Medical Home for Children With Medical Complexity From the Perspective of Their Families.
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Malik Kristina E, Dafoe Ashley, Holler Kate, Dorsey Brooke, Stille Christopher J
Аннотация
OBJECTIVE: To identify what families value in a medical home for children with medical complexity (CMC).
METHODS: This was a qualitative study using semi-structured interviews with caregivers of CMC recruited from a single complex care program. Participants identified their child's medical home during the interview and described experiences which made it a medical home. Transcripts were coded and themes were developed through iterative team discussions using thematic analysis; a parent partner was on the team from grant development through publication.
RESULTS: During semi-structured interviews with 17 caregivers of CMC, 94% identified a medical home. Caregivers identified it was valuable for a medical home to provide comprehensive whole child care through curiosity to learn, a willingness to problem solve, and bi-directional trusting relationships that reduced the mental load on families. Caregivers gave specific examples where the synergy of these components improved CMC and family outcomes.
CONCLUSION: These results support the current definition of a pediatric medical home for CMC and also introduce the novel idea that having a medical home has a positive outcome of reducing the mental load on families. This study suggests ensuring delivery of care concordant with the medical home principles can support the needs of CMC.
METHODS: This was a qualitative study using semi-structured interviews with caregivers of CMC recruited from a single complex care program. Participants identified their child's medical home during the interview and described experiences which made it a medical home. Transcripts were coded and themes were developed through iterative team discussions using thematic analysis; a parent partner was on the team from grant development through publication.
RESULTS: During semi-structured interviews with 17 caregivers of CMC, 94% identified a medical home. Caregivers identified it was valuable for a medical home to provide comprehensive whole child care through curiosity to learn, a willingness to problem solve, and bi-directional trusting relationships that reduced the mental load on families. Caregivers gave specific examples where the synergy of these components improved CMC and family outcomes.
CONCLUSION: These results support the current definition of a pediatric medical home for CMC and also introduce the novel idea that having a medical home has a positive outcome of reducing the mental load on families. This study suggests ensuring delivery of care concordant with the medical home principles can support the needs of CMC.