Multiple sclerosis and related disorders · 2026
Implementation of the first adolescence-to-adulthood transition programme for Multiple Sclerosis in Latin America.
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Silva Berenice A, Kenny Juan I, Jerez Javier, Míguez Jimena, González Alejandra
Аннотация
INTRODUCTION: Structured transition programmes have shown benefits in chronic paediatric conditions, but no transition models for multiple sclerosis (MS) have been documented in Latin America.
OBJECTIVE: To evaluate the implementation of an adolescence-to-adulthood transition programme for patients with paediatric-onset MS (POMS) in Argentina.
METHODS: A prospective study was conducted involving patients aged 18 to 24 years with MS onset before the age of 18, currently followed at the MS centre. The European Quality of Life - 5 Dimensions (EQ-5D), the MS International Quality of Life Questionnaire (MusiQoL), and the Transition Readiness Assessment Questionnaire 5 (TRAQ-5) were administered.
RESULTS: Thirty-three patients were included, 36.4% (n = 12) enrolled in the hospital transition programme. Significant differences were observed in TRAQ-5 and MusiQoL scores between those who had and had not participated in the transition programme (p < 0.0001 and p = 0.0002), with a positive correlation between both scales (p < 0.0001). TRAQ-5 scores increased significantly at the end of the transition period (p = 0.0005). In multiple linear regression, participation in the transition programme was significantly associated with higher MusiQoL scores (adjusted R² = 0.331).
CONCLUSION: Transition programmes improve quality of life, autonomy, and self-management in young adults with MS.
OBJECTIVE: To evaluate the implementation of an adolescence-to-adulthood transition programme for patients with paediatric-onset MS (POMS) in Argentina.
METHODS: A prospective study was conducted involving patients aged 18 to 24 years with MS onset before the age of 18, currently followed at the MS centre. The European Quality of Life - 5 Dimensions (EQ-5D), the MS International Quality of Life Questionnaire (MusiQoL), and the Transition Readiness Assessment Questionnaire 5 (TRAQ-5) were administered.
RESULTS: Thirty-three patients were included, 36.4% (n = 12) enrolled in the hospital transition programme. Significant differences were observed in TRAQ-5 and MusiQoL scores between those who had and had not participated in the transition programme (p < 0.0001 and p = 0.0002), with a positive correlation between both scales (p < 0.0001). TRAQ-5 scores increased significantly at the end of the transition period (p = 0.0005). In multiple linear regression, participation in the transition programme was significantly associated with higher MusiQoL scores (adjusted R² = 0.331).
CONCLUSION: Transition programmes improve quality of life, autonomy, and self-management in young adults with MS.