The Impact of Gestational Trophoblastic Neoplasia Following the Completion of Treatment: A Descriptive Exploratory Qualitative Study.

AIMS: To explore women's experience of the period after completion of cancer treatment for gestational trophoblastic neoplasia (GTN): a descriptive exploratory study.

DESIGN

A descriptive exploratory qualitative study.

METHODS

Women diagnosed with the rare pregnancy-related cancer GTN who had completed their treatment participated in semi-structured telephone interviews. Twenty-two interviews were conducted in June 2024 and digitally recorded and transcribed verbatim. The analysis used reflective thematic analysis.

RESULTS

Complex responses to treatment completion were revealed, described by some as a 'double-edged sword'. The end of treatment routine, coupled with recovery from physical effects, left space for the impact of all they had experienced to 'hit home'. Multiple concerns and losses were described, including issues relating to pregnancy, self-identity, confidence, fear of recurrence, work and relationships. Gaps in immediate post-treatment support services created challenges for recovery.

CONCLUSION

The study provides valuable insight into the physical, emotional and social impact of GTN experienced by patients following treatment. The findings highlight the importance of continuing support in the immediate post-treatment period. This study has identified ways in which services can be improved, recognising the need for an individual-tailored approach to reflect the complex responses of patients to treatment completion.

IMPACT: The findings reveal that many women begin to process the implications of their diagnosis and treatment following the completion of their treatment. The end of treatment can be a time when support from healthcare staff is reduced due to fewer routine contacts with healthcare staff. However, these findings suggest the need for nurses to ensure services continue to provide support during the post-treatment recovery phase.

PATIENT OR PUBLIC CONTRIBUTION: The interview schedule was reviewed by women previously treated for GTN.