Scandinavian journal of caring sciences · 2026
Content Validation of Primary Care Network Assessment Scale for Palliative Care Patients (ARCP) and Clinical Utility in Patients With Advanced Cancer.
СтатьяВалидационное исследованиеНазвание и аннотация: Перевод в очереди
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Fontes Érika Fernanda Palmieri Guimarães, de Ouverney Andréia Pereira Assis, da Rosa Karla Santos da Costa, de Oliveira Lívia Costa
Аннотация
OBJECTIVE: To validate the content of Primary Care Network Assessment Scale for Palliative Care Patients (ARCP) and to assess its clinical utility in patients with advanced cancer.
METHODS: This methodological study was conducted in two phases. Phase 1 involved content validation by ten social work experts using the Content Validity Index (CVI). Phase 2 evaluated clinical utility in a cross-sectional study of 148 patients with advanced cancer receiving palliative care. Data included sociodemographic and clinical variables, global quality of life (EORTC QLQ-C15-PAL) and perceived social support (SSQ6). Multivariate logistic regression analyses were performed.
RESULTS: The ARCP showed high content validity, with CVI values above 0.80 for relevance, clarity and vocabulary across all items. Clinically, 80% of patients were classified as having fully participatory caregiving networks; however, 42% relied on a single caregiver, indicating structural vulnerability despite high perceived support. Male sex (OR = 2.53; 95% CI: 1.02-4.34), being married (OR = 2.78; 95% CI: 1.06-7.29), better global quality of life (OR = 2.33; 95% CI: 1.08-2.57) and greater satisfaction with social support (OR = 5.41; 95% CI: 1.35-15.05) were independently associated with a fully participatory network.
CONCLUSION: The ARCP demonstrated evidence of content validity and clinical utility for assessing caregiving network structure in palliative care.
METHODS: This methodological study was conducted in two phases. Phase 1 involved content validation by ten social work experts using the Content Validity Index (CVI). Phase 2 evaluated clinical utility in a cross-sectional study of 148 patients with advanced cancer receiving palliative care. Data included sociodemographic and clinical variables, global quality of life (EORTC QLQ-C15-PAL) and perceived social support (SSQ6). Multivariate logistic regression analyses were performed.
RESULTS: The ARCP showed high content validity, with CVI values above 0.80 for relevance, clarity and vocabulary across all items. Clinically, 80% of patients were classified as having fully participatory caregiving networks; however, 42% relied on a single caregiver, indicating structural vulnerability despite high perceived support. Male sex (OR = 2.53; 95% CI: 1.02-4.34), being married (OR = 2.78; 95% CI: 1.06-7.29), better global quality of life (OR = 2.33; 95% CI: 1.08-2.57) and greater satisfaction with social support (OR = 5.41; 95% CI: 1.35-15.05) were independently associated with a fully participatory network.
CONCLUSION: The ARCP demonstrated evidence of content validity and clinical utility for assessing caregiving network structure in palliative care.