Improving Digital Patient Care: Lessons Learned from Patient-Reported and Expert-Reported Experience Measures for the Clinical Practice of Multidimensional Walking Assessment.

BACKGROUND

Walking assessment (WA) enables meaningful patient mobility assessment. In this context, patient satisfaction with WA can influence assessment compliance and indirectly affect outcomes. One opportunity to assess patient satisfaction is patient-reported and expert-reported experience measures (PREM). Research on PREMs and WA in daily clinical multiple sclerosis (MS) practice does not exist yet.

METHODS

We surveyed people with MS about their experience and assessed healthcare professionals' experience via an interview after patients completed WA.

RESULTS

Gait parameters were related to perceived difficulty and strain during performance. Less impaired patients perceived the WA to be less difficult and exhausting but were less likely to use WA results for themselves. Men and patients with higher impairment would perform WA more frequently. A good workflow, a fully performed WA with standardized testing, fully functional measurement systems, support and safeguarding by staff in case of falls, direct feedback after the testing, and patients' motivation are identified by the experts as necessary factors for a successful WA.

CONCLUSIONS

As patients' experience has an impact on patients' outcomes, long-term monitoring of PREMs should become an integral part of the healthcare service to identify and avoid problems early.