BMC nephrology · 2015
Perceptions about hemodialysis and transplantation among African American adults with end-stage renal disease: inferences from focus groups.
Сравнительное исследованиеСтатьяМногоцентровое исследованиеПоддержка NIH: внешняя программаПоддержка исследования: вне правительства СШАНазвание и аннотация: Перевод в очереди
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Salter Megan L, Kumar Komal, Law Andrew H, Gupta Natasha, Marks Kathryn, Balhara Kamna, McAdams-DeMarco Mara A, Taylor Laura A, Segev Dorry L
Аннотация
BACKGROUND: Disparities in access to kidney transplantation (KT) remain inadequately understood and addressed. Detailed descriptions of patient attitudes may provide insight into mechanisms of disparity. The aims of this study were to explore perceptions of dialysis and KT among African American adults undergoing hemodialysis, with particular attention to age- and sex-specific concerns.
METHODS: Qualitative data on experiences with hemodialysis and views about KT were collected through four age- and sex-stratified (males <65, males ≥65, females <65, and females ≥65 years) focus group discussions with 36 African American adults recruited from seven urban dialysis centers in Baltimore, Maryland.
RESULTS: Four themes emerged from thematic content analysis: 1) current health and perceptions of dialysis, 2) support while undergoing dialysis, 3) interactions with medical professionals, and 4) concerns about KT. Females and older males tended to be more positive about dialysis experiences. Younger males expressed a lack of support from friends and family. All participants shared feelings of being treated poorly by medical professionals and lacking information about renal disease and treatment options. Common concerns about pursuing KT were increased medication burden, fear of surgery, fear of organ rejection, and older age (among older participants).
CONCLUSIONS: These perceptions may contribute to disparities in access to KT, motivating granular studies based on the themes identified.
METHODS: Qualitative data on experiences with hemodialysis and views about KT were collected through four age- and sex-stratified (males <65, males ≥65, females <65, and females ≥65 years) focus group discussions with 36 African American adults recruited from seven urban dialysis centers in Baltimore, Maryland.
RESULTS: Four themes emerged from thematic content analysis: 1) current health and perceptions of dialysis, 2) support while undergoing dialysis, 3) interactions with medical professionals, and 4) concerns about KT. Females and older males tended to be more positive about dialysis experiences. Younger males expressed a lack of support from friends and family. All participants shared feelings of being treated poorly by medical professionals and lacking information about renal disease and treatment options. Common concerns about pursuing KT were increased medication burden, fear of surgery, fear of organ rejection, and older age (among older participants).
CONCLUSIONS: These perceptions may contribute to disparities in access to KT, motivating granular studies based on the themes identified.
Предметные рубрики MeSH
AdultBlack or African AmericanAge FactorsAgedAttitude to HealthBaltimoreFemaleFocus GroupsHealthcare DisparitiesHumansKidney Failure, ChronicKidney TransplantationMaleMarylandMiddle AgedPerceptionPhysician-Patient RelationsQualitative ResearchQuality of LifeRenal DialysisRisk AssessmentSex FactorsTreatment Outcome