The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association · 2016
Survey of Parent Experiences in Prenatal Visits for Infants With Cleft Lip and Palate.
СтатьяПоддержка исследования: вне правительства СШАНазвание и аннотация: Перевод в очереди
Обработка статьи · этапы, ошибки и управление
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Ошибки и ограничения
История · было → стало
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Greives Matthew R, Anderson Casey L, Dean Riley A, Scerbo Michelle L, Doringo Irene L, Bebbington Michael W, Teichgraeber John F
Аннотация
OBJECTIVE: The purpose of this study was to identify the factors that influence the parent's choice of cleft team/surgeon.
DESIGN: A 10-question survey was used to elucidate factors that influenced parents in choosing their cleft surgeon. No identifiers of the origin of the study were used to improve parent objectivity.
SETTING: The setting for this study was an online survey.
PARTICIPANTS: Participants in this study were the parents of children who were born with cleft lip and/or palate.
INTERVENTIONS: Parents were contacted anonymously via national, established social media websites that were independently run by the parents themselves.
MAIN OUTCOME MEASURES: The main outcome measures were information regarding choice of cleft team/surgeon, source of patient referrals, and use of online media in decision making.
RESULTS: A total of 112 responses were received. Of the parents, 77% sought prenatal evaluation with at least one cleft surgeon. Maternal-fetal medicine specialists were the most frequent (42%) referral source, followed by primary obstetricians (14%) and pediatricians (12%). The surgeon/cleft team's experience level and overall personality were ranked as the most important, whereas the least important was distance traveled. Of the parents, 95% used the Internet or social media for research prior to their prenatal visit; 96% of the parents found the prenatal visit helpful, and the most useful topics discussed were treatments (surgical, nonsurgical) and feeding techniques.
CONCLUSION: This study identifies factors used to choose a cleft team/surgeon. Parents are more concerned with the experience level, reputation, and environment of the cleft team/surgeon than the distance traveled to get to the center.
DESIGN: A 10-question survey was used to elucidate factors that influenced parents in choosing their cleft surgeon. No identifiers of the origin of the study were used to improve parent objectivity.
SETTING: The setting for this study was an online survey.
PARTICIPANTS: Participants in this study were the parents of children who were born with cleft lip and/or palate.
INTERVENTIONS: Parents were contacted anonymously via national, established social media websites that were independently run by the parents themselves.
MAIN OUTCOME MEASURES: The main outcome measures were information regarding choice of cleft team/surgeon, source of patient referrals, and use of online media in decision making.
RESULTS: A total of 112 responses were received. Of the parents, 77% sought prenatal evaluation with at least one cleft surgeon. Maternal-fetal medicine specialists were the most frequent (42%) referral source, followed by primary obstetricians (14%) and pediatricians (12%). The surgeon/cleft team's experience level and overall personality were ranked as the most important, whereas the least important was distance traveled. Of the parents, 95% used the Internet or social media for research prior to their prenatal visit; 96% of the parents found the prenatal visit helpful, and the most useful topics discussed were treatments (surgical, nonsurgical) and feeding techniques.
CONCLUSION: This study identifies factors used to choose a cleft team/surgeon. Parents are more concerned with the experience level, reputation, and environment of the cleft team/surgeon than the distance traveled to get to the center.