The landscape of inter-institutional and multinational collaborations in Kawasaki disease.
Обработка статьи · этапы, ошибки и управление
Ошибки и ограничения
История · было → стало
Состояние обновляется каждые 5 секунд, пока блок открыт. Процент показывается только там, где известен объём работы. Пауза останавливает продолжение этапа; текущий запрос к источнику может завершиться.
Gutierrez Rojas Rocio, Breault Fabiola, Alzyoud Raed, Ayusawa Mamoru, Barri Ana Caro, Belot Alexandre, Burns Jane C, Choueiter Nadine, Corinaldesi Elena, Fabi Marianna, Fernández-Cooke Elisa, Gámez-González Luisa B, Hamada Hiromichi, Harahsheh Ashraf, Ikeda Kazuyuki, Jakob André, Johnson Thomas, Kim Gi-Beom, Kobayashi Shinobu, Kobayashi Tohru, Kone-Paut Isabelle, Kotby Alyaa, Kuijpers Taco W, Kuipers Irene M, Manlhiot Cedric, Mastrolia Maria Vincenza, Matsubara Daisuke, McCrindle Brian W, Mitani Yoshihide, Nakamura Yoshikazu, Netea Stejara A, Onouchi Yoshihiro, Pal Priyankar, Philip Saji, Portman Michael A, Rudolph André, Singh Surjit, Singh-Grewal Davinder, Simonini Gabriele, Song Min-Seob, Toral Vázquez Belén, Ulloa-Gutierrez Rolando, Webb Kate, Wollenweber Erik, Yamazaki-Nakashimada Marco A, Tremoulet Adriana H, Dahdah Nagib
Аннотация
METHODS: Information was collected from KD collaborative groups. One or more of the following characteristics defined a collaborative effort: recurrent clinical trials collaborations; international, national, or inter-state research; multi-institutional research; national, government-funded or government-appointed research; epidemiology group; focus group on KD practice and science or other health organization chapters.
RESULTS: Responses from 21 groups were limited to a single country (67%). The groups had formed between 1991 and 2022. The multi-institutional groups included a median of 1 to 20 countries composed of 2-150 institutions. The groups included 10-20 active members (38%), 20-50 members (38%), 50-100 (14%), or more than 100 members (10%). A majority (67%) of collaborations produced 2-11 peer-reviewed publications. Groups operated under a centralized governance structure (62%), with a steering committee (92%), bylaws (23%), membership fees (8%), or another structure (8%). Only 33% had a written mission statement. While 48% had no formal funding sources, the remainder were funded by granting agencies (29%), governmental funding (24%), private donations and fundraising drives (19%), industry support (10%), and other sources (5%).
CONCLUSIONS: The majority of polled collaborative KD groups are multicenter and national. Despite the lack of funding, most groups demonstrate successful collaborations that result in peer-reviewed publications. There is a need for advocacy to support funding for these important collaborative groups.