Health expectations : an international journal of public participation in health care and health policy · 2025
Developing, Piloting and Evaluating a Patient Support Portal for Men With Prostate Cancer in Victoria: An Action Research Study.
СтатьяПоддержка исследования: вне правительства СШАНазвание и аннотация: Перевод в очереди
Обработка статьи · этапы, ошибки и управление
Загрузка состояния…
Ошибки и ограничения
История · было → стало
Состояние обновляется каждые 5 секунд, пока блок открыт. Процент показывается только там, где известен объём работы. Пауза останавливает продолжение этапа; текущий запрос к источнику может завершиться.
Shemesh Benjamin, Opie Jacinta L, Dunn Rodney L, Mclaughlin Garth, Argawal Vivek, Pomery Amanda, Manus Chris Mac, O'Brien Colin, Lewis Katrina, Shub Max, Wilton Paula, Satasivam Prassannah, Evans Melanie, Millar Jeremy, Evans Sue M
Аннотация
INTRODUCTION: Men with prostate cancer (PCa) and their support providers face challenges in accessing high-quality, impartial information tailored to their specific needs to enhance their overall care and decision-making. We describe the development, piloting and evaluation of the co-designed web portal 'BroSupPORT'.
METHODS: IT teams developed and integrated BroSupPORT into the Victorian Prostate Cancer Outcomes Registry (PCOR-Vic) electronic patient-reported outcome follow-up process. A comparator tool was built enabling men to compare their patient-reported outcome results against men of similar age, risk profile and after the same treatment. PCOR-Vic participants were invited to access BroSupPORT after 12 months of follow-up patient-reported outcome measure completion. Factors associated with consent to BroSupPORT were determined using logistic regression. Portal access data were gathered from PCOR-Vic data extracts and Google Analytics. A survey on portal exit and 2 weeks after consent was used to collect feedback.
RESULTS: Over a 4-month pilot, 331/583 (57%) men consented to accessing BroSupPORT. Among those men who accessed the portal, the majority (209/331 =63%) were diagnosed in a private hospital and resided in a major city (214/331=65%). On average, men spent 3:20 min on the portal, with sexual function aspects receiving the most attention. Twenty-three percent of men revisited the portal during the pilot. Most men found the portal easy to use, reassuring and informative, while 9% found the patient-reported comparisons difficult to interpret.
CONCLUSION: A patient portal-enabling men to compare their patient-reported outcomes with other similar men and providing access to information and resources-may be a scalable solution in addressing the complex supportive care needs of men with PCa on a population basis.
METHODS: IT teams developed and integrated BroSupPORT into the Victorian Prostate Cancer Outcomes Registry (PCOR-Vic) electronic patient-reported outcome follow-up process. A comparator tool was built enabling men to compare their patient-reported outcome results against men of similar age, risk profile and after the same treatment. PCOR-Vic participants were invited to access BroSupPORT after 12 months of follow-up patient-reported outcome measure completion. Factors associated with consent to BroSupPORT were determined using logistic regression. Portal access data were gathered from PCOR-Vic data extracts and Google Analytics. A survey on portal exit and 2 weeks after consent was used to collect feedback.
RESULTS: Over a 4-month pilot, 331/583 (57%) men consented to accessing BroSupPORT. Among those men who accessed the portal, the majority (209/331 =63%) were diagnosed in a private hospital and resided in a major city (214/331=65%). On average, men spent 3:20 min on the portal, with sexual function aspects receiving the most attention. Twenty-three percent of men revisited the portal during the pilot. Most men found the portal easy to use, reassuring and informative, while 9% found the patient-reported comparisons difficult to interpret.
CONCLUSION: A patient portal-enabling men to compare their patient-reported outcomes with other similar men and providing access to information and resources-may be a scalable solution in addressing the complex supportive care needs of men with PCa on a population basis.