BMJ open quality · 2026
Growing pains: adult subspecialist perspectives on improving transition from paediatric to adult care for youth with complex health conditions.
СтатьяНазвание и аннотация: Перевод в очереди
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Malecki Sarah, Nwebube Chioma, Orkin Julia, Halperin Ilana, Khan Naba, John Tomisin, Katzberg Hans, Steiman Amanda, Matta Rano, Abdelhalim Tarek, Andrade Danielle M, Bollegala Natasha, Bush Shaelynne, Ryan Clodagh, Colapinto Kimberly, Dimaraki Eleni, Faghfoury Hanna, Fu Jennifer, Gakhal Natasha, Gent Kate, Korenblum Chana, Lansang Perla, Lega Iliana C, Lim-Fat Mary Jane, Liu Jessica, Miranda Susan, Mukerji Geetha, Pagnoux Christian, Vandepoele Eryn, Vinik Ophir, Wentzel Karla, Yates Darryl, Cohen Eyal, Toulany Alene
Аннотация
BACKGROUND: Transition from paediatric to adult healthcare is particularly challenging for youth and their caregivers with complex health conditions, in part due to loss of paediatric supports and fragmentation of care, contributing to adverse outcomes. To date, transition research and policy has been largely driven by paediatric providers. Adult provider insights are critical to inform gaps in care, transition planning and enable innovative and sustainable interventions.
OBJECTIVE: To describe adult subspecialist perspectives on barriers, facilitators and opportunities to improve the transition from paediatric to adult care for youth with complex health conditions.
METHODS: An adult subspecialty advisory panel was convened as part of a quality improvement initiative, with physicians from the University of Toronto's Department of Medicine who participated in three virtual meetings through nomination and stakeholder mapping. The first meeting focused on identifying current challenges and opportunities in transition to adult care; the second generated recommendations based on experiential knowledge and the third reviewed case studies to identify gaps and potential solutions. Discussions were recorded, transcribed and analysed using thematic qualitative analysis.
RESULTS: Adult subspecialists identified five key areas for improvement: (1) preparing patients and families for the realities of adult care; (2) bridging communication gaps between paediatric and adult systems; (3) moving beyond age-based transition toward flexible, readiness-informed care; (4) strengthening collaboration among adult providers caring for young adults; and (5) addressing structural and infrastructure barriers within adult care systems.
CONCLUSION: Adult care physicians expressed and validated that young adults have unique care needs during their transition to adult care. They highlighted the need for stronger cross-system collaboration, resources and investment to ensure effective transition. These findings highlight barriers in implementing current paediatric-led transition standards and provide a foundation for system-level, disease-agnostic approaches to improve continuity of care across the paediatric-adult divide.
OBJECTIVE: To describe adult subspecialist perspectives on barriers, facilitators and opportunities to improve the transition from paediatric to adult care for youth with complex health conditions.
METHODS: An adult subspecialty advisory panel was convened as part of a quality improvement initiative, with physicians from the University of Toronto's Department of Medicine who participated in three virtual meetings through nomination and stakeholder mapping. The first meeting focused on identifying current challenges and opportunities in transition to adult care; the second generated recommendations based on experiential knowledge and the third reviewed case studies to identify gaps and potential solutions. Discussions were recorded, transcribed and analysed using thematic qualitative analysis.
RESULTS: Adult subspecialists identified five key areas for improvement: (1) preparing patients and families for the realities of adult care; (2) bridging communication gaps between paediatric and adult systems; (3) moving beyond age-based transition toward flexible, readiness-informed care; (4) strengthening collaboration among adult providers caring for young adults; and (5) addressing structural and infrastructure barriers within adult care systems.
CONCLUSION: Adult care physicians expressed and validated that young adults have unique care needs during their transition to adult care. They highlighted the need for stronger cross-system collaboration, resources and investment to ensure effective transition. These findings highlight barriers in implementing current paediatric-led transition standards and provide a foundation for system-level, disease-agnostic approaches to improve continuity of care across the paediatric-adult divide.