Psychology & health · 2025
Physical activity during and after a residential rehabilitation programme for people living with axial spondyloarthritis: a qualitative exploration of patient and health care professional perspectives.
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Ingram Thomas A, Sengupta Raj, Standage Martyn, Clift Bryan C, Rouse Peter C
Аннотация
OBJECTIVE: To explore the experiences of people living with axial spondyloarthritis (axSpA), and views of health care professionals (HCPs), on physical activity engagement and maintenance during and after a structured physiotherapy led residential rehabilitation programme.
METHODS AND MEASURES: Nineteen individuals with axSpA who attended a two-week residential rehabilitation programme, and nine HCPs were recruited. Patient focus groups and HCP interviews were audio recorded, transcribed verbatim, and thematic analysis was conducted. Where appropriate, self-determination theory was used in the interpretation and discussion of inductively constructed themes.
RESULTS: Four key themes were identified: Interactions within the social environment (Immersion, Group dynamic, Interactions with health care professionals, Interactions with family and others); Adjusting to PA (Enjoyment & interest, Balance & body awareness, Routine & habit, Feedback); Transformative experience (Education as a foundation, Perception of PA, Ownership, Visible difference); and Psychological challenges (Frustration, Guilt, Fear, Normalisation).
CONCLUSION: Rehabilitation programmes for people with axSpA should be holistic. Framing PA in terms of enjoyment, instead of purely for health, may support PA maintenance. For HCPs, creating a more socially supportive environment, involving important others, and focusing on techniques to support autonomous motivation can help those with axSpA maintain PA after a rehabilitation programme.
METHODS AND MEASURES: Nineteen individuals with axSpA who attended a two-week residential rehabilitation programme, and nine HCPs were recruited. Patient focus groups and HCP interviews were audio recorded, transcribed verbatim, and thematic analysis was conducted. Where appropriate, self-determination theory was used in the interpretation and discussion of inductively constructed themes.
RESULTS: Four key themes were identified: Interactions within the social environment (Immersion, Group dynamic, Interactions with health care professionals, Interactions with family and others); Adjusting to PA (Enjoyment & interest, Balance & body awareness, Routine & habit, Feedback); Transformative experience (Education as a foundation, Perception of PA, Ownership, Visible difference); and Psychological challenges (Frustration, Guilt, Fear, Normalisation).
CONCLUSION: Rehabilitation programmes for people with axSpA should be holistic. Framing PA in terms of enjoyment, instead of purely for health, may support PA maintenance. For HCPs, creating a more socially supportive environment, involving important others, and focusing on techniques to support autonomous motivation can help those with axSpA maintain PA after a rehabilitation programme.