Developing world bioethics · 2019
Video-recording complex health interactions in a diverse setting: Ethical dilemmas, reflections and recommendations.
СтатьяPersonal NarrativeПоддержка исследования: вне правительства СШАНазвание и аннотация: Перевод в очереди
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Scott Megan, Watermeyer Jennifer, Wessels Tina-Marie
Аннотация
Video-recording healthcare interactions provides important opportunities for research and service improvement. However, this method brings about tensions, especially when recording sensitive topics. Subsequent reflection may compel the researcher to engage in ethical and moral deliberations. This paper presents experiences from a South African genetic counselling study which made use of video-recordings to understand communicative processes in routine practice. Video-recording as a research method, as well as contextual and process considerations are discussed, such as researching one's own field, issues of trust and anonymity, the challenge of providing true informed consent and capturing details which may cause psychological harm. Several recommendations for research practice in diverse healthcare settings are made. This includes the value of reflective pieces, the importance of retrospective consent, disclosure of the limitations to anonymity, as well as the collective responsibility of those involved to produce ethical research. These recommendations have value for genetic counselling and other healthcare fields.