Die Ophthalmologie · 2026
[Experiences of glaucoma patients : Evaluation of the survey conducted by the Federal Association Glaucoma Self-help and the DOG Glaucoma Section].
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Joachim Stephanie C, Hirth Cornel, Weber Sabine, Prokosch Verena, DOG-Sektion Glaukom, Bundesverband Glaukom-Selbsthilfe e. V.
Аннотация
BACKGROUND: Glaucoma is one of the most frequent causes of blindness worldwide, including in Germany; however, it is unclear whether all those affected are sufficiently informed about their condition, possible treatment and their side effects.
OBJECTIVE: Survey of glaucoma patients to assess the level of awareness about the disease and its treatment.
METHODS: The questionnaire consisted of 11 specific questions that asked about education and satisfaction with treatment for glaucoma. It was developed by the Federal Association Glaucoma Self-help (Bundesverband Glaukom-Selbsthilfe e. V). in collaboration with the Glaucoma Section of the German Society of Ophthalmology (DOG) and made available to members of the association as well via the website and patient forums and in waiting rooms.
RESULTS: A total of 334 glaucoma patients participated in the survey between July 2024 and June 2025. Of the respondents 15.5% stated that they were very well informed, while 40.1% reported they had been inadequately informed. There was a lack of information on treatment options and side effects as well as on the prescribed eye drops. Patients therefore sought alternative sources of information (e.g., the internet). Results were also mixed when it came to information about treatment use and side effects and 89.5% said they knew how to use their treatment. Approximately 50% were able to discuss changes to their treatment or information about alternative treatments with their doctor.
CONCLUSION: The findings from this survey should be used to develop more targeted patient education strategies in the future. Patient-centered understandable and continuous education should be a central component of treatment. This would contribute to improved adherence and thus also to the quality of life of those affected.
OBJECTIVE: Survey of glaucoma patients to assess the level of awareness about the disease and its treatment.
METHODS: The questionnaire consisted of 11 specific questions that asked about education and satisfaction with treatment for glaucoma. It was developed by the Federal Association Glaucoma Self-help (Bundesverband Glaukom-Selbsthilfe e. V). in collaboration with the Glaucoma Section of the German Society of Ophthalmology (DOG) and made available to members of the association as well via the website and patient forums and in waiting rooms.
RESULTS: A total of 334 glaucoma patients participated in the survey between July 2024 and June 2025. Of the respondents 15.5% stated that they were very well informed, while 40.1% reported they had been inadequately informed. There was a lack of information on treatment options and side effects as well as on the prescribed eye drops. Patients therefore sought alternative sources of information (e.g., the internet). Results were also mixed when it came to information about treatment use and side effects and 89.5% said they knew how to use their treatment. Approximately 50% were able to discuss changes to their treatment or information about alternative treatments with their doctor.
CONCLUSION: The findings from this survey should be used to develop more targeted patient education strategies in the future. Patient-centered understandable and continuous education should be a central component of treatment. This would contribute to improved adherence and thus also to the quality of life of those affected.