CJC open · 2026
Appraising the Quality of Patient Decision Aids for Brain and Heart Health: An Environmental Scan with a Health Equity Lens.
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Lewis Krystina B, Goge Sandhya, Kiss Alda, Carley Meg, Julien Ann Marie, Higdon Gloria, Fiedorowicz Jess G, Graham Ian D, Achim Amélie M, Beanlands Rob, Gessese Semhal, Straus Sharon, Edwards Jodi, Bujold Mathieu, Tobe Sheldon, Stacey Dawn
Аннотация
BACKGROUND: New brain-heart clinical practice guidelines recommend provision of patient decision aids (PtDAs) to support people with or at risk of brain and heart conditions. We aimed to identify and appraise the quality of PtDAs addressing brain-heart conditions and their consideration of health equity.
METHODS: We conducted an online environmental scan to identify publicly available PtDAs. Two reviewers independently searched, extracted data, and appraised their quality using International Patient Decision Aid Standards (IPDAS) criteria, the Patient Education Materials Assessment Tool (PEMAT), and the PROGRESS-Plus framework for health equity.
RESULTS: Of 2549 resources identified, 51 PtDAs were eligible. Nine addressed a combined brain-heart decision, 36 addressed primarily cardiovascular conditions with brain implications, and 6 addressed primarily brain conditions with heart implications. Few focused on brain-heart conditions concomitantly. None addressed dementia, and only one addressed depression as a primary condition with cardiovascular risk addressed as a secondary consideration. The mean IPDAS essential criteria score was 5.8 of 7 (SD 1.5, range 1-7). For PEMAT-P (for printable materials), 91% PtDAs achieved an adequate understandability rating (≥ 70%), and 56% achieved an adequate actionability rating (≥ 70%). The most frequently reported PROGRESS-Plus healthy equity items were age (80%), gender/sex (45%), and socioeconomic status (39%).
CONCLUSIONS: Brain-heart guidelines recommend PtDA use, but our environmental scan highlighted the need for more of these important interventions. Few PtDAs focused on brain and heart conditions concomitantly, none addressed dementia, and only one addressed depression, which frequently coexist with cardiac conditions. PtDAs also lacked actionable guidance within an equity-informed framework to support quality decisions and decision-making processes for all.
METHODS: We conducted an online environmental scan to identify publicly available PtDAs. Two reviewers independently searched, extracted data, and appraised their quality using International Patient Decision Aid Standards (IPDAS) criteria, the Patient Education Materials Assessment Tool (PEMAT), and the PROGRESS-Plus framework for health equity.
RESULTS: Of 2549 resources identified, 51 PtDAs were eligible. Nine addressed a combined brain-heart decision, 36 addressed primarily cardiovascular conditions with brain implications, and 6 addressed primarily brain conditions with heart implications. Few focused on brain-heart conditions concomitantly. None addressed dementia, and only one addressed depression as a primary condition with cardiovascular risk addressed as a secondary consideration. The mean IPDAS essential criteria score was 5.8 of 7 (SD 1.5, range 1-7). For PEMAT-P (for printable materials), 91% PtDAs achieved an adequate understandability rating (≥ 70%), and 56% achieved an adequate actionability rating (≥ 70%). The most frequently reported PROGRESS-Plus healthy equity items were age (80%), gender/sex (45%), and socioeconomic status (39%).
CONCLUSIONS: Brain-heart guidelines recommend PtDA use, but our environmental scan highlighted the need for more of these important interventions. Few PtDAs focused on brain and heart conditions concomitantly, none addressed dementia, and only one addressed depression, which frequently coexist with cardiac conditions. PtDAs also lacked actionable guidance within an equity-informed framework to support quality decisions and decision-making processes for all.