Alzheimer's & dementia (Amsterdam, Netherlands) · 2026
Community-based survey of perceived stigma in dementia: Insights from a collectivist culture.
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Büyükgök Deniz, Karabulut Sevde Nur, Kepenek Ata Onur, Direk Neşe, Baral-Kulaksızoğlu Işın
Аннотация
INTRODUCTION: In collectivist cultures, internalization of negative beliefs fosters stigma. This study aimed to assess the relationship between Alzheimer's disease (AD) knowledge and perceived stigma, focusing on sociodemographic variables; gender, marital status, occupation, and caregiving.
METHODS: In this cross-sectional study, 529 participants without psychiatric or neurological disorders completed the AD knowledge scale, Affiliated Stigma Scale (ASS), and stigma survey.
RESULTS: Age showed no significant association with dementia knowledge or stigma. Higher education, living with family/spouse, and being dementia caregiver predicted perceived stigma. Caregivers demonstrated higher knowledge; but similar stigma levels compared to non-caregivers which was significantly related to the ASS-affective component. Healthcare workers also had greater knowledge but did not differ in terms of stigma.
DISCUSSION: Knowledge improved by education and caregiving, but stigma persisted, shaped by emotional and cultural dynamics. These findings suggest that future interventions may benefit from integrating empathy-focused and attitude-based modules, as knowledge alone is insufficient to reduce stigma.
METHODS: In this cross-sectional study, 529 participants without psychiatric or neurological disorders completed the AD knowledge scale, Affiliated Stigma Scale (ASS), and stigma survey.
RESULTS: Age showed no significant association with dementia knowledge or stigma. Higher education, living with family/spouse, and being dementia caregiver predicted perceived stigma. Caregivers demonstrated higher knowledge; but similar stigma levels compared to non-caregivers which was significantly related to the ASS-affective component. Healthcare workers also had greater knowledge but did not differ in terms of stigma.
DISCUSSION: Knowledge improved by education and caregiving, but stigma persisted, shaped by emotional and cultural dynamics. These findings suggest that future interventions may benefit from integrating empathy-focused and attitude-based modules, as knowledge alone is insufficient to reduce stigma.