Disability and rehabilitation · 2026
The forgotten other: supporting the caregivers of people with limb absence during the hospital-to-home transition.
СтатьяНазвание и аннотация: Перевод в очереди
Обработка статьи · этапы, ошибки и управление
Загрузка состояния…
Ошибки и ограничения
История · было → стало
Состояние обновляется каждые 5 секунд, пока блок открыт. Процент показывается только там, где известен объём работы. Пауза останавливает продолжение этапа; текущий запрос к источнику может завершиться.
Everard Ciara, Wadey Ross, Humphrey Kimberley, Day Melissa
Аннотация
OBJECTIVES: This study aimed to explore the interrelated nature of how caregivers of people with limb absence impact and are impacted by the hospital-to-home transition. Moreover, this study aimed to explore how caregivers can be better supported to fulfil their role.
METHODS: A qualitative research study positioned within an interpretivist paradigm. Semi-structured interviews were conducted with 14 people with limb absence and 15 nominated caregivers. Data was analysed using a reflexive thematic analysis.
RESULTS: Three themes were identified. (1) Lost in transition: Disconnection and divergence from hospital to home: Both service-users and caregivers described how caregivers were marginalised during the rehabilitation process, creating differing expectations regarding the service-users' functional abilities upon returning home. (2) Bearing the weight of unseen struggles: The impact of caregiving on the caregiver. Participants described the cumulative impact of caregiving on caregivers' physical and mental well-being. (3) Supporting the supporter: Participants highlighted informational, care continuity, communication, and social support gaps and described how such gaps could be addressed.
CONCLUSION: This study offers novel insights into the lived experiences of both caregivers and service-users in navigating the hospital-to-home transition and foregrounds how caregivers can be better supported. Centralising caregivers' perspectives can help ensure that they inform evidence-based initiatives to support integrated rehabilitation environments.
METHODS: A qualitative research study positioned within an interpretivist paradigm. Semi-structured interviews were conducted with 14 people with limb absence and 15 nominated caregivers. Data was analysed using a reflexive thematic analysis.
RESULTS: Three themes were identified. (1) Lost in transition: Disconnection and divergence from hospital to home: Both service-users and caregivers described how caregivers were marginalised during the rehabilitation process, creating differing expectations regarding the service-users' functional abilities upon returning home. (2) Bearing the weight of unseen struggles: The impact of caregiving on the caregiver. Participants described the cumulative impact of caregiving on caregivers' physical and mental well-being. (3) Supporting the supporter: Participants highlighted informational, care continuity, communication, and social support gaps and described how such gaps could be addressed.
CONCLUSION: This study offers novel insights into the lived experiences of both caregivers and service-users in navigating the hospital-to-home transition and foregrounds how caregivers can be better supported. Centralising caregivers' perspectives can help ensure that they inform evidence-based initiatives to support integrated rehabilitation environments.