Balancing benefits and challenges of eHealth for family caregivers of people with Parkinson's disease - A qualitative study.

BACKGROUND

The rapid growth in eHealth has opened new possibilities for people with Parkinson's Disease (PD). However, given the complexity of PD symptoms, the successful adoption of eHealth likely depends on support from family caregivers. While previous research has explored the perspectives of people with PD, insights into family caregivers' perceptions of eHealth remain limited.

OBJECTIVE

To explore family caregivers' perceptions of eHealth in formal care and in supporting physical activity and exercise.

METHODS

A qualitative design was used. Interviews were conducted with 15 family caregivers (mean age 72 years, 12 women) from rural and urban Sweden. Data were analyzed using inductive qualitative content analysis.

RESULTS

Three themes were formed. Being the driving force for home, health and technology described family caregivers' responsibility for managing technology, balancing confidence with concerns about added burden and emotional strain, and supporting their partner's engagement. A threat to or enabler of quality time reflected hopes that eHealth could save time and offer greater flexibility to schedule exercise and activities around daily routines, while also raising concerns about isolation and reduced social interaction if digital solutions replaced in-person contact. This theme also emphasized the need for accessible exercise solutions tailored to PD symptoms. Bridging the gaps: blending digital and in-person care highlighted reliance on online information due to limited professional guidance, appreciation for timely access to PD nurses, and a preference for integrated care models combining in-person care and digital follow-up.

CONCLUSION

In conclusion, family caregivers highlighted both opportunities and challenges with eHealth in PD care, valuing its potential to ease daily responsibilities and enhance flexibility, while expressing concerns about added burden, reduced social interaction, and limited professional guidance.