Journal of perinatology : official journal of the California Perinatal Association · 2026
Comfort, benefit, and distress: An exploratory study of research experiences of bereaved parents in the neonatal intensive care unit.
СтатьяНазвание и аннотация: Перевод в очереди
Обработка статьи · этапы, ошибки и управление
Загрузка состояния…
Ошибки и ограничения
История · было → стало
Состояние обновляется каждые 5 секунд, пока блок открыт. Процент показывается только там, где известен объём работы. Пауза останавливает продолжение этапа; текущий запрос к источнику может завершиться.
Lin Matthew, Williams David N, Vitcov Giselle, Sayeed Sadath, DeCourcey Danielle D, Wolfe Joanne, Cummings Christy L
Аннотация
BACKGROUND: Understanding the research experiences of bereaved parents is necessary to advance palliative care.
OBJECTIVE: To evaluate levels of and factors associated with bereaved parent comfort, benefit, and distress from research participation and to qualitatively explore research experiences.
STUDY DESIGN: Exploratory analysis of survey data from parents of infants who died in a level IV NICU (2010-2020). Fisher's exact and Chi-square tests were used to identify factors associated with parental comfort, distress, and benefit. Qualitative analyzed was performed using the constant comparative method.
RESULTS: 40/146 parents (27%) responded. 83% reported being "very comfortable" or "comfortable", 83% reported "some" to "a lot" of benefit, 26% reported "a great deal" to "a lot" of distress from participation. Goal-discordant care was significantly associated with distress. Research participation themes included "helping others", "processing experiences" and "re-living negative experiences".
CONCLUSION: Bereaved NICU parents simultaneously experience distress, comfort, and benefit from research participation.
OBJECTIVE: To evaluate levels of and factors associated with bereaved parent comfort, benefit, and distress from research participation and to qualitatively explore research experiences.
STUDY DESIGN: Exploratory analysis of survey data from parents of infants who died in a level IV NICU (2010-2020). Fisher's exact and Chi-square tests were used to identify factors associated with parental comfort, distress, and benefit. Qualitative analyzed was performed using the constant comparative method.
RESULTS: 40/146 parents (27%) responded. 83% reported being "very comfortable" or "comfortable", 83% reported "some" to "a lot" of benefit, 26% reported "a great deal" to "a lot" of distress from participation. Goal-discordant care was significantly associated with distress. Research participation themes included "helping others", "processing experiences" and "re-living negative experiences".
CONCLUSION: Bereaved NICU parents simultaneously experience distress, comfort, and benefit from research participation.