BMC palliative care · 2026
A study on the role of palliative care in the physical and psychological well-being of people with life-limiting illnesses in Kashmir, India.
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Wani Shaqul Qamar, Matia Muskan, Jayaprakasan Akshithanand Kuzhikkat, Sofi Mushtaq Ahmed, Khan Talib, Parvaiz Mahrukh, Ayub Maryam, Farooq Uroosa, Wani Tabinda, Najar Sajad Ahmed, Rana Smriti, Sharma Parth
Аннотация
BACKGROUND: Living with life-limiting illnesses (LLIs) is psychologically distressing, even more so in areas with a complicated terrain and which are conflict-prone, where insecurity, displacement, and limited healthcare access adds to the burden. In this study, we assessed the impact of palliative care on the psychological well-being of people with life-limiting illnesses in Jammu & Kashmir, a conflict-prone region in India.
METHODS: This retrospective study analyzed the records of patients with LLIs visiting a pain and palliative care clinic in Srinagar, Jammu & Kashmir, from November 2023 to March 2025. The impact of palliative care on their well-being was assessed twice using the Edmonton Symptom Assessment Scale (ESAS), one week apart, the socioeconomic and disease-related factors associated with a change in scores were also identified. Data were analyzed using Rv4.4.2.
RESULTS: Of the 881 patients included in the analysis, the mean age was 57.6 ± 15.2 years, with almost an equal number above and below 60 years. Males constituted 59.6% of the population. A majority (73.4%) were from Below Poverty Line (BPL) households. Sons were the primary caregivers in 52.5% of the cases, and most (73.2%) of the caregivers were males. The primary diagnosis in almost all (97.6%) was cancer. Statistically significant differences were noted: median pain scores reduced from 7 to 2 (p < 0.001) and total scores reduced from 29 to 20 (p < 0.001) between initial assessment and at follow-up after registration at the palliative care unit. There was no significant difference in median score across age groups, gender and BPL category.
CONCLUSION: Our study population primarily consisted of patients with malignancies. There was a significant difference in pain score, well-being score, and total ESAS score on follow-up assessment after 1 week of receiving palliative care. No significant difference was seen based on age, gender, socioeconomic status, or diagnosis, highlighting the universal impact of palliative care in people with LLIs.
METHODS: This retrospective study analyzed the records of patients with LLIs visiting a pain and palliative care clinic in Srinagar, Jammu & Kashmir, from November 2023 to March 2025. The impact of palliative care on their well-being was assessed twice using the Edmonton Symptom Assessment Scale (ESAS), one week apart, the socioeconomic and disease-related factors associated with a change in scores were also identified. Data were analyzed using Rv4.4.2.
RESULTS: Of the 881 patients included in the analysis, the mean age was 57.6 ± 15.2 years, with almost an equal number above and below 60 years. Males constituted 59.6% of the population. A majority (73.4%) were from Below Poverty Line (BPL) households. Sons were the primary caregivers in 52.5% of the cases, and most (73.2%) of the caregivers were males. The primary diagnosis in almost all (97.6%) was cancer. Statistically significant differences were noted: median pain scores reduced from 7 to 2 (p < 0.001) and total scores reduced from 29 to 20 (p < 0.001) between initial assessment and at follow-up after registration at the palliative care unit. There was no significant difference in median score across age groups, gender and BPL category.
CONCLUSION: Our study population primarily consisted of patients with malignancies. There was a significant difference in pain score, well-being score, and total ESAS score on follow-up assessment after 1 week of receiving palliative care. No significant difference was seen based on age, gender, socioeconomic status, or diagnosis, highlighting the universal impact of palliative care in people with LLIs.