Hospital organisation and healthcare providers' barriers in the management of fetuses and newborns affected by life-limiting or life-threatening conditions in Italy: a national survey.

UNLABELLED: The prevalence of children affected by life-limiting or life-threatening conditions has consistently increased over the last decade. Communicating to parents that their baby is affected by such conditions is always difficult. The aim of this study was to investigate the management of these infants among healthcare providers (HCPs) in Italy. This is a descriptive study involving HCPs working in neonatal departments. Participants were asked to. complete a questionnaire specifically created. 180 HCPs responded to the questionnaire. Overall, 62% of professionals believe they are not adequately trained in communicating with parents, and 53% believe their ethical and spiritual values ​​influence their work. Significant differences were found in the availability and involvement of pediatric palliative care services during the perinatal period across Northern, Central, and Southern Italy.

CONCLUSION: This study highlighted the need to invest in training professionals, palliative care, and integrated care networks to ensure equitable and respectful care.

WHAT IS KNOWN: • The prevalence of children affected by life-limiting or life-threatening conditions has consistently increased over the last decade. • Communication is a key aspect of care while dealing with parents in the perinatal setting.

WHAT IS NEW: • A great number of physicians and nurses do not feel prepared enough in managing communication with parentsof newborns affected by life-limiting or life-threatening conditions. • Perinatal management and the availability of perinatal palliative care services and ethical consults are extremelyheterogeneous across Italy, with Northern regions offering greater care opportunities.