Not ready to die yet! A patient perspective of motor neurone disease.

Palliative care expertise is appropriate at various points in a person's life or during a specific illness, but there is a widespread public and professional misperception that it is an 'end of life' service. This patient view is written jointly by Mark and by the consultant in his local palliative care service, who has been intermittently involved in his care and healthcare planning for a decade.