Palliative medicine reports · 2025
Allostatic Load Borne by Caregivers of Children with Serious Conditions: Acceptability of Self-Reported Data.
СтатьяНазвание и аннотация: Перевод в очереди
Обработка статьи · этапы, ошибки и управление
Загрузка состояния…
Ошибки и ограничения
История · было → стало
Состояние обновляется каждые 5 секунд, пока блок открыт. Процент показывается только там, где известен объём работы. Пауза останавливает продолжение этапа; текущий запрос к источнику может завершиться.
Grossoehme Daniel H, Friebert Sarah, Jenkins Rachel, Pelletier Jonathan H, White P Cooper, Forbes Michael L
Аннотация
BACKGROUND: Stress due to a child's serious medical condition affects the entire family. The cumulative stress burden ("allostatic load") has deleterious health and economic effects.
OBJECTIVE: Demonstrate adequate caregiver willingness to disclose health care utilization and work/school attendance.
SETTING/SUBJECTS: We enrolled caregivers of well children (WC), children with medical complexity (CMC), and children receiving palliative care (PC) (N = 15; 5 per group) in a midwestern United States pediatric hospital.
MEASUREMENTS: A novel allostatic load questionnaire and the Family Appraisal of Caregiving Questionnaire for Palliative Care were used.
RESULTS: All caregivers (100% female) completed the study, with 9% of data missing. PC participants reported greater child health care appointments and admissions compared with WC and CMC.
CONCLUSIONS: Caregivers will disclose sensitive information for health care research, providing evidence for subsequent, adequately powered studies to inform policy-making. While underpowered for between-group analyses, results suggest pediatricians should routinely assess caregiver burden even at well-child visits.
OBJECTIVE: Demonstrate adequate caregiver willingness to disclose health care utilization and work/school attendance.
SETTING/SUBJECTS: We enrolled caregivers of well children (WC), children with medical complexity (CMC), and children receiving palliative care (PC) (N = 15; 5 per group) in a midwestern United States pediatric hospital.
MEASUREMENTS: A novel allostatic load questionnaire and the Family Appraisal of Caregiving Questionnaire for Palliative Care were used.
RESULTS: All caregivers (100% female) completed the study, with 9% of data missing. PC participants reported greater child health care appointments and admissions compared with WC and CMC.
CONCLUSIONS: Caregivers will disclose sensitive information for health care research, providing evidence for subsequent, adequately powered studies to inform policy-making. While underpowered for between-group analyses, results suggest pediatricians should routinely assess caregiver burden even at well-child visits.