Disability and rehabilitation · 2026
Priorities and design principles for a mobile health (mHealth) application to support self-management of post-stroke aphasia: experience gathering and prioritisation within an experience-based co-design approach.
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Wallace Sarah J, Isaacs Megan, Sinh Gopal, Sinh Archana, Copland David A, Palmer Victoria J, Wiles Janet, Angwin Anthony J, Hill Annie J, Timmer Barbra H B, Shrubsole Kirstine, Campbell Jessica H, Hudson Kyla, Gullo Matthew, Worthy Peter
Аннотация
PURPOSE: (1) To map experiences of accessing and adhering to community-based aphasia therapy and establish priorities for improvement, based on lived experience. (2) To identify design principles for the experience-based co-design (EBCD) of a mobile health self-management application.
MATERIALS AND METHODS: EBCD and human-centred design. Experience gathering and prioritisation (stages 1-3) with people with aphasia (n = 13), significant others (n = 8), and health professionals (n = 10) in interviews and focus groups. Experiences were analysed thematically to identify unmet needs and touchpoints. Priorities were established using the nominal group technique and mapped to technology design principles.
RESULTS: Five touchpoints were identified: (1) The great divide; (2) Too many roadblocks; (3) Getting enough therapy that's right for me; (4) A need to see progress; (5) Finding new ways to bridge the therapy gap. Priorities were synthesised into seven themes and mapped to five design principles: (1) connects the person with aphasia with their speech pathologist, significant others, and community; (2) links goals-therapy-outcomes; (3) shows progress visually; (4) supports information finding and sharing; and (5) is customisable and accessible.
CONCLUSION: A customisable mHealth solution that facilitates connections and information finding, links goals, therapy, and outcomes, and tracks progress over time, may support aphasia self-management.
MATERIALS AND METHODS: EBCD and human-centred design. Experience gathering and prioritisation (stages 1-3) with people with aphasia (n = 13), significant others (n = 8), and health professionals (n = 10) in interviews and focus groups. Experiences were analysed thematically to identify unmet needs and touchpoints. Priorities were established using the nominal group technique and mapped to technology design principles.
RESULTS: Five touchpoints were identified: (1) The great divide; (2) Too many roadblocks; (3) Getting enough therapy that's right for me; (4) A need to see progress; (5) Finding new ways to bridge the therapy gap. Priorities were synthesised into seven themes and mapped to five design principles: (1) connects the person with aphasia with their speech pathologist, significant others, and community; (2) links goals-therapy-outcomes; (3) shows progress visually; (4) supports information finding and sharing; and (5) is customisable and accessible.
CONCLUSION: A customisable mHealth solution that facilitates connections and information finding, links goals, therapy, and outcomes, and tracks progress over time, may support aphasia self-management.