Impacts of the COVID-19 pandemic on the mental health of Asian women with endometriosis in Canada: A photovoice study.

BACKGROUND

Endometriosis affects approximately 190 million people globally and 2 million in Canada. Experiences of endometriosis can profoundly impact all aspects of life, including physical, mental, and financial well-being. The Coronavirus Disease 2019 (COVID-19) pandemic impacted endometriosis care, mental health outcomes, and increased overt racism towards Asian people internationally.

OBJECTIVES

In this study, we aimed to describe the impacts of the COVID-19 pandemic on the mental health of Asian women living with endometriosis.

DESIGN

Qualitative, photovoice.

METHODS

We used photovoice, an arts-based methodology, and thematic analyses of 22 interviews with East, South, and Southeast Asian cisgender women living in Canada regarding their experiences with endometriosis during the COVID-19 pandemic.

RESULTS

Participant photographs and narratives conveyed how the COVID-19 pandemic caused disruptions in their lives, which influenced the ways they navigated, managed, and coped with endometriosis symptoms and, ultimately, their mental health. Some disruptions were exacerbated during the COVID-19 pandemic and impacted mental health, including worsening of and inability to manage symptoms as usual, deepening isolation and disconnection from self and society, and turbulent and transformational experiences in interpersonal relationships. Other disruptions were unrelated to the COVID-19 pandemic, including endometriosis invisibility and invalidation, the burden of necessary overplanning, and the complexities of grappling with uncertain fertility. Participants commonly described experiencing feelings of guilt, uncertainty, lack of control, fear, hopelessness, grief, anxiety, and depression.

CONCLUSION

The COVID-19 pandemic exacerbated disruptions affecting the mental health of participants, disruptions unrelated to COVID-19 remained in participants' lives. Considering the latter was particularly impactful on the mental health of participants as these disruptions existed prior to - and would continue beyond - the COVID-19 pandemic.