PEC innovation · 2026
A feasibility pilot trial to deliver a virtual intervention for promoting daily self-management in adolescents and young adults with cystic fibrosis: A brief report of tele-coach outcomes.
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Lindwall Jennifer J, Muther Emily F, Ford Christine, Bord Evelyn, Green Angela, Polineni Deepika, Naranjo Diana, Duncan Christina L
Аннотация
OBJECTIVE: Cystic fibrosis (CF) is a chronic disease that requires intensive daily self-management. Adherence can be challenging for adolescents and young adults (AYA) with CF. This manuscript reports on the characteristics, participation, and satisfaction outcomes of "tele-coaches" who virtually delivered an intervention to promote adherence in this population.
METHODS: Health care professionals from six CF centers were recruited, trained, and supervised to serve as tele-coaches for AYA with CF (ages 14-25). Demographic and participation data were collected. Tele-coaches completed a post-training knowledge assessment to establish preparedness for intervention delivery. Fidelity to intervention delivery was collected. Tele-coaches completed a satisfaction survey regarding their experiences delivering the skills-based intervention.
RESULTS: Fifteen health care professionals were recruited. They felt adequately trained to serve as tele-coaches. All tele-coaches passed the knowledge assessment (M = 91.8%, SD = 7.78), demonstrated acceptable fidelity to the intervention (M = 83.1% SD = 8.46), rated training and supervision as helpful, and were satisfied with the intervention and participant engagement.
CONCLUSION: Tele-coaches provided valuable feedback that can be incorporated into future training, supervision, and intervention delivery to promote self-management in AYA with CF.
INNOVATION: Multidisciplinary health care professionals can be adequately trained to implement a flexible, tailored, and supportive adherence intervention in AYA with CF.
CLINICAL TRIAL REGISTRATION: •Name: Tele-Coaching Intervention to Improve Treatment Adherence in Cystic Fibrosis•URL: https://clinicaltrials.gov/study/NCT03921229•ClinicalTrials.gov ID: NCT03921229.
METHODS: Health care professionals from six CF centers were recruited, trained, and supervised to serve as tele-coaches for AYA with CF (ages 14-25). Demographic and participation data were collected. Tele-coaches completed a post-training knowledge assessment to establish preparedness for intervention delivery. Fidelity to intervention delivery was collected. Tele-coaches completed a satisfaction survey regarding their experiences delivering the skills-based intervention.
RESULTS: Fifteen health care professionals were recruited. They felt adequately trained to serve as tele-coaches. All tele-coaches passed the knowledge assessment (M = 91.8%, SD = 7.78), demonstrated acceptable fidelity to the intervention (M = 83.1% SD = 8.46), rated training and supervision as helpful, and were satisfied with the intervention and participant engagement.
CONCLUSION: Tele-coaches provided valuable feedback that can be incorporated into future training, supervision, and intervention delivery to promote self-management in AYA with CF.
INNOVATION: Multidisciplinary health care professionals can be adequately trained to implement a flexible, tailored, and supportive adherence intervention in AYA with CF.
CLINICAL TRIAL REGISTRATION: •Name: Tele-Coaching Intervention to Improve Treatment Adherence in Cystic Fibrosis•URL: https://clinicaltrials.gov/study/NCT03921229•ClinicalTrials.gov ID: NCT03921229.